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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-27-2013, 12:21 AM | #1 | ||
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So I have had RSD in my right leg since I was 13 and have noticed symptoms in my left leg off and on through out the years. Now there is no missing them. I am having burning, shooting, stabbing, color change, hair and nail growth changes-the whole 9 yards.
I was wondering how long it took for other people to go from occasional symptoms to full blown constant RSD? I haven't injured my leg but I am sure it is getting over used because my right legs RSD is flaring up and I am unable to use it because it dislocates every time it spasms (up to 15 times a day) so I am going to be undergoing surgery on my right leg. I was also wondering if there were any ideas on how I can temporarily hold off spreading? I am unsure if the upcoming surgery will worsen both legs or just the one being cut. I'm scared and any advice would help. Thank you. |
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07-27-2013, 12:43 AM | #2 | ||
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under an hour. Specialist touched arm with a sensitvity pin 4insoutside affected area. Spread from below wrist upto elbow.
The worst thing about this is nothing is constaant, nothings the same for everybody. Unless your condition is life threatening I would try to avoid surgery. If it is print this out and insist it is followed Reflex Sympathetic Dystrophy(RSD) also known as Complex Regional Pain Syndrome (CRPS) is a chronic condition characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling and extreme sensitivity to touch. People afflicted with RSD/CRPS are extraordinarily sensitive to certain stimuli, such as touch, movement, and injections. Patient Tips 1. Bring a written copy of your medication regime. It is important to verify whether your medication regime can be taken care of solely through use of the hospital's pharmacy. Some medications may not be part of the hospital's formulary. 2. Avoid having ice applied to the RSD-affected limb 3. Instruct all hospital staff to always ask before touching you! 4. Request that the surgery protocols be adjusted so that the pre-op shave be done after anesthesia (catheter is in place for epidural or whatever). It feels like a lawnmower has been run over your legs when they shave without anesthesia. Patient Room 1. Whenever possible patient should be in a quiet part of the hospital 2. In a semi-private room, patient should be in the second bed to avoid inadvertent bumping 3. A Zone-Air bed should be used (adjust mattress pressure to patient preference) 4. Heat and air conditioning should be well regulated 5. Standing orders should be issued for patients to have warm blankets 6. Foot Cradle to hold bed linens off body area (will diminish tactile stimuli) 7. Frequent linen changes may be necessary due to hyperhidrosis (increased sweating). 8. Allow family members to bring in clean sheet and pillowcases for patient. Hospital sheets are not soft and can irritate the skin. 9. Place a sign above bed designating affected limb Procedures 1. Perform a phlebotomy on unaffected limb only 2. Use Pediatric needles (any trauma can cause the spread of RSD to a new site) 3. Warm Alcohol or Betadine wipes with warm running water on outside of package before opening package (these wipes can be very cold to the patient) 4. If PICA site is available, see if blood can be obtained from PIC instead of using vena puncture technique. Blood Pressure and Pulse Rate 1. Use cuff on unaffected limb only 2. Use thigh cuff if both upper extremities are affected Transport 1. Ask what kind of help the patient needs when transferring to a stretcher or wheelchair (simply touching arms or legs may cause hyperalgesia) 2. Use extreme care over bumps, such as elevator doorways Feeding 1. Be careful not to touch patient extremities with bedside table Patient Identification 1. Place red bracelet on unaffected limb 2. Place red dot sticker on patient chart The Joint Commission on Accreditation of Healthcare Organizations has mandated the healthcare institutions that they accredit to assess and treat your pain. Pain is now to be assessed as the fifth vital sign. Patients have the right to demand pain control and to be pain free. Hospital Protocol RSD/CRPS Patient: Handle With Care! PO Box 502 Milford, CT 06460 Toll-free: 877-662-7737 info@rsds.org www.rsds.org |
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"Thanks for this!" says: | AZ-Di (07-27-2013), dd in pain (07-31-2013) |
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