Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-23-2013, 12:30 PM #11
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Quote:
Originally Posted by Tashi View Post
My last post, I missed the most important muscle; the heart muscle was in a spasm..
This sounds like something I had first thing in the morning a month or so ago - I thought I was having a heart attack or something, it frightened me so much! I had it a few times over the course of three days, and must admit that the prospect of it happening again does scare me...

I'd be interested to know what yours felt like, if you had any other symptoms, how long it lasted, etc. Also how often it happens

Hope you're having a good day today

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
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Old 01-29-2014, 01:48 AM #12
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Just as I suspected, The RSD foot and leg is cramping because of the RSD
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Old 01-30-2014, 05:30 PM #13
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Originally Posted by nw31705 View Post
I have had RSD since 2008 it started in my right foot and has now spread to 70% of my body. I have recently started experiencing bad cramps in my legs; mostly at night. The first one hit me so hard I was unable to walk. The cramp was in my right calf, but my entire leg from the big toe to the hip was numb with severe pain shooting up and down. It took a long time for it to go away my husband didn't know what to do. It finally subsided, but my leg was sore for days. I am now experiencing cramps just by moving my legs a certain way; I have to be really careful how I move them. My question is rather anyone else has experienced severe cramps with RSD. I know about he muscle spasms I have them regularly; this is something new and awful. Thanks in advance!
I am new to this site but I will give it a try. I have had CRPS for 5 years in both legs and now also left arm. I was experiencing foot cramps at night that keep me from getting any sleep. The doctor gave me Ubretid, which may have another name for you, (I live in Finland and med names are different) and this med, taken every other day has controlled to foot cramps. I hope you find answers and get some relief.
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Old 01-30-2014, 09:52 PM #14
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I have experienced the same type of severe cramping for quite a few years-and I have only had CRPS since March 1. However, 18 months ago the neuropthy I have had since at least 2007 was finally diagnosed as CMT (Charcot-Marie-Tooth -a genetic hereditary motor and sensory neuropathy disease). No meds have helped the cramping, although lyrica did help with the pain/buzzing/zapping. I started taking Topamax for my migraine and that too has help with the CRPS to some degree (left foot, moved to right foot but not very bad). There have been times when my calf was sore for several days after cramping in the middle of the night. One time I remember crying in the bathroom when I could not stand my foot down to stop my calf from cramping. Gosh, I wish someone could come up with something that would STOP THIS!!
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Old 01-31-2014, 02:30 AM #15
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I used to get cramps very bad. I still do at times but not as severe. I tried many muscle relaxers to help but it did not. I know that if I am in one position for too long that contributes to my cramps. It did not help me but some people find some relief if they take Epsom salt baths. I do find warm baths helpful.
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Old 02-01-2014, 06:28 AM #16
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Quote:
Originally Posted by Tashi View Post
My last post, I missed the most important muscle; the heart muscle was in a spasm..
I get severe cramping too. I call out screaming in pain and there is nothing anyone can do. It has mostly happened at home getting in and out of bed has been my worse place. But I had one incident at my daughters house. I think it came from sitting in a chair different from what I was used to. But what I do is take potassium magnesium (2) during the cramping spell it helps almost right away and gives a calming effect. I too will hurt the next day. I hate them. I worry I will have one in public. Hope you have some answers
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