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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Marine Corps RSD back in 1996 plus recurring kidney stones (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/192440-marine-corps-rsd-1996-plus-recurring-kidney-stones.html)

MSniper 08-09-2013 06:45 PM

Quote:

Originally Posted by alaska49 (Post 1005936)
I first want to say thank you for your service and so sorry you ended up with this RSD and having so much issues with the kiddneys. My brother has just joined the marines and made it through boot camp and is now in 29 palms for schooling. I am so sorry for your pain and hope you can find some relief.

Have you tried ketamine? I use ketamine nassal spray and ketamine lossanges and they help greatly to live somewhat of a life.

No I have never tried ketamine at all to the best of my knowledge. If I have tried it then that was when I was undergoing tests in the corps over it. As for your brother SEMPER FI... tell him that he has a Marine here in Tennessee that is giving him a shout out.

MSniper 08-09-2013 06:48 PM

Quote:

Originally Posted by Steelworker (Post 1006093)
The VA docs convinced me years ago that they are graduates of the Clown College School of Medicine.

Here is what I would sugest. Go see a prominent non-VA RSD doc. Get a complete workup along with a rating of disability from him/her. File a new claim with the VA. As a matter of law the VA must accept the rating provided by your non-VA RSD expert.

Brother, from what you have written you should be rated at 100%.

Finally most states have a State Veterans Affairs Office which will represent you at no cost before the VA. The DAV also has some good National Service Officers (but if the DAV tells you the VA is not your enemy - walk away from them).

The VA ALWAYS has an adversarial relationship with the veteran.

I am trying to find a non-va rsd doc now in tennesse and that is a hard thing to find. I have an appointment with the va in september for a new primary care there and right now i am researching trying to find a doc in my area that knows about rsd. So i can have all the paperwork ready to file a new claim and hopefully get them to accept it.

I used the DAV when I got out of service and they were slow as crap. The DAV Rep was basically useless and I ended up going to a state congressmen and getting the issue pushed a little faster.

alaska49 08-11-2013 10:42 AM

Quote:

Originally Posted by MSniper (Post 1006099)
No I have never tried ketamine at all to the best of my knowledge. If I have tried it then that was when I was undergoing tests in the corps over it. As for your brother SEMPER FI... tell him that he has a Marine here in Tennessee that is giving him a shout out.


Ok I will tell him, this is what he wanted to do since he was 3 and he got his dream so i am so happy for him.

Samantha

Steelworker 08-12-2013 09:23 AM

heads uo
 
Sent you a private message. See top right corner of screen below WELCOME.

MSniper 08-12-2013 11:42 AM

For the past few days I have tried to find a doctor in the area that deals with RSD. The area that I live in is Tennessee and the location would be anywhere close to knoxville tn and the surrounding areas. Is there a website that I can go to in order to search for specialists that deal with RSD and put my zipcode in and locate a doctor. I am trying to get a specialist before my appointments with the va so i can at least have some ground work going on to file another claim for this new signs and symptoms of a pre-existing condition of RSD.

MSniper 08-13-2013 03:10 PM

Okay update for this forum. I have spent the last two days at least 3 hours each day calling doctors in the area of knoxville tn and the doctors either do not know of RSD even though i found the list through one of the links on this forum, or the doctors will not treat me or see me because of the military and the records that will not be released to a private doctor from the military. It seems I have hit a roadblock and cannot figure out a way around this. There has to be a doctor that can see me and at least give me an opinion in this issue.

I am really frustrated that A. being a veteran and not being able to be seen by a doctor that is in the private industry because of the condition I have and it being military related. B. Some doctors said that they would see me only to call back a few hours later via receptionist telling me that they don't know as of yet if they can see me. C. this condition is getting worse and the pain is getting to be an issue but i am still pushing forward because I have to sleepless nights are occurring now because of no rest cramps, burning tenderness senstivity to touch and sweating in the areas, so something has to give. relieving this nightmare again is horrible especially after the injury in the right leg then the left and now the back.

If anyone knows of a doctor that is in my area please let me know, I have exhuasted all efforts on my end.

reluctant@thetable 08-21-2013 05:35 PM

I've had kidney stones also. Initially the medical professionals couldn't come up with a cause (no family history, no suspicious food items, etc.) When I saw a new neurologist, he immediately knew my stones came from my Topamax. By chance are you on Topamax?

baseballfan 02-26-2014 02:49 AM

RSD and kidney stones
 
I used to get lots if kidney stones. My uroligist told me not to eat spinach as that can cause kidney stones. Also I am not able to take vit c pills as they also cause me to have kidney stones

Tntabbyshaw 11-14-2016 05:27 PM

I have has surgery for kidney stones 4 times, laser. Once, I had the old basket therapy and they left a tube in my for swelling (that was the most painful) 7 times I have passed stones. I have 9 still in my kidney. I was diagnosed with spongular kidney disease. My kidney just makes them it doesn't matter what I eat. Now since I have CRPS I am worried that the kidney will get CRPS. Is that possible?


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