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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Guest
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Recently a certain female from a certain society has stated that the debate I got in parliament and the EU investigation are ineffective and has done nothing to help sufferers. Her claim that they have done more was to post 4 tweets but she was unable to post replies to them.
Now I have no idea whether the EU government’s investigation will ultimately get us anywhere but at least they are looking which they have never done before. As for the debate, well it has got the UK’s Top Specialist interested so I’m pretty sure it will help sufferers eventually. I am afraid the meeting was initiated by Professor McCabe, she approached me looking to discuss what had been previously debated. It was a good discussion and I raised many of your concerns. She has taken away the points and will be contacting me soon, I will of course keep you updated. I would be more than happy to re-send your letter or pass on a new letter to Norman Lamb on your behalf. Kind regards, Iain Iain Stewart MP Member of Parliament for Milton Keynes South Parliamentary Private Secretary to Rt Hon Patrick McLoughlin MP, Secretary of State for Transport HOUSE OF COMMONS LONDON SW1A 0AA |
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#2 | ||
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Member
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I'm not sure where your comments end and and the pasted text from your MP's letter starts in your post.
One huge issue we have in the UK is that Ms McCabe (who is a nurse specialist not a doctor for the avoidance of any confusion) is touted as a such leading expert and authority in CRPS. That is one of the reasons that treatment and knowledge is as backward as it is in the UK. |
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#3 | ||
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Senior Member
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Agreed Neurochic. On both points.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#4 | ||
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Guest
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it starts I am afraid
I have been treated by or spoke to 7 including those generally regarded as the top 3. Prof McCabe, Dr Shenker at Addenbrookes and that twat at the Walton Centre. They are all as bad as each other, the thought that a sufferer might know more than them frightens them and they will not admit it. |
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