Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-02-2013, 08:13 PM #1
rsdno rsdno is offline
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Default An Apology

Hi Sometimes when I write which is rare plus I spare you my poetry . I was written a scathing letter about how I mention I had RSD 45 years to show I suffered more than others . It is most certainly not true .
I want people to know that you can have RSD 45 years ,it didnt kill me I'm 59 and it probably wont kill you . I come here on occasion to read and learn to write a PM or an answer if I can .
By the way what I say and feel is all of us RSDers are hurting this second so past pain really doesnt mean much in a temporal way.
I apologize I have been coming to Mark Lester's RSD Group,Fibro and now PsA RA since the end of the Millenium .
By the way does anyone else have Psoriatic Arthritis I read over %10 of Psoriasis sufferers may have this Autoimmune painful disease ,if you have please write here or sympa@inbox.com
Again I am sorry if anyone thi nks I let people know how long I have had RSD as being a negative thing ,it really makes me feel terrible
Gentle Hug
rsdno
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Old 09-02-2013, 08:33 PM #2
Dubious Dubious is offline
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Quote:
Originally Posted by rsdno View Post
Hi Sometimes when I write which is rare plus I spare you my poetry . I was written a scathing letter about how I mention I had RSD 45 years to show I suffered more than others . It is most certainly not true .
I want people to know that you can have RSD 45 years ,it didnt kill me I'm 59 and it probably wont kill you . I come here on occasion to read and learn to write a PM or an answer if I can .
By the way what I say and feel is all of us RSDers are hurting this second so past pain really doesnt mean much in a temporal way.
I apologize I have been coming to Mark Lester's RSD Group,Fibro and now PsA RA since the end of the Millenium .
By the way does anyone else have Psoriatic Arthritis I read over %10 of Psoriasis sufferers may have this Autoimmune painful disease ,if you have please write here or sympa@inbox.com
Again I am sorry if anyone thi nks I let people know how long I have had RSD as being a negative thing ,it really makes me feel terrible
Gentle Hug
rsdno
Didn't see the original thread, but wow...45 years! I think I need to get down on my knees and thank the good Lord for people like you. You have soooo much to offer, experience-wise. Please don't stop posting!
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Old 09-03-2013, 03:26 AM #3
Brambledog Brambledog is offline
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Don't feel bad about posting rsdno. Why should you conceal the years you have had this thing?

Maybe someone was just having a very bad day and struck out. It happens. I don't recall seeing a post from you that made me feel like you were saying you have it much worse and we should all stop complaining! It's not a competition

I for one find it amazingly helpful to know that someone out there has been dealing with CRPS for so long and can still laugh about it and live life in any way at all. It gives me hope. Some days the fear of what the future holds is overwhelming, and to know that it is manageable for all that time gives me a rock to lean against.

Keep posting and stay positive. It's like a shot in the arm Thanks.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 09-03-2013, 06:21 PM #4
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Default What?? No Way!

An apology… for saying you’ve had this 45 years... I don’t believe one was in order at all. Heck, on MANY occasions I have mentioned my 10 year journey, which is a fraction of yours. I think 45 years or one day; you’ve earned the right to say whatever you wish. Telling others how long you’ve been dealing with this allows them to know that you’ve been around a block or two.

Bram might be right in that perhaps whomever this was, was just having a bad day, or to use the new phrase Bram taught me today (which I intend to use often), maybe they were just a Donkey on the edge … lol, that just cracks me up!! I swear I’m going to tell this to my children the next time they are working the proverbial last nerve. And if nothing else perhaps it will make you smile too. Cheer up hon, it’s all good.
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Old 09-03-2013, 06:28 PM #5
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Default Hi rsdno

Keep right on posting. You are an inspiration to all of us, no matter what our pains are to keep on trucking. No need to say sorry on this site, we all need each other. ginnie
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Old 09-04-2013, 02:51 PM #6
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I missed that post, but wow, no offense here. I would value your input. The others are probably right that someone just had a bad day. Try to ignore it.
We all DO need each other!
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Old 09-05-2013, 10:25 AM #7
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Curiosity overcame me......I went searching for that post.

Sometimes we can say things that just come out wrong, especially when we are stressed by pain. Sometimes people can read too much into a simple statement because they are in pain, so a simple non offensive statement can trigger an angry response because it somehow reminds them of a negative experience they had.

Your simple statement looks like just that. You didn't say something that could obviously be taken another way. It appears that a reader just had a defensive weak moment because of something that is happening in their own life, not because you did anything wrong.

Your opinion is valued here, as is everyone's. Kudos for offering an apology, even though you did nothing wrong, just to make someone who is obviously suffering feel better. That takes character. I can fail at that and respond to an attack with my own defensiveness and anger, which just aggravates a situation.

We are all human. We all make mistakes. Pain, stress, and disability can make those mistakes more common. I hope that your angry reader realizes that they were off base and that you don't worry that you did something wrong.

Pain free days for all of us
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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