Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-14-2013, 10:20 PM #1
Ithurtswcv Ithurtswcv is offline
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Join Date: Sep 2013
Location: Australia
Posts: 1
10 yr Member
Ithurtswcv Ithurtswcv is offline
Newly Joined
 
Join Date: Sep 2013
Location: Australia
Posts: 1
10 yr Member
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Only found this site today & shocked to find so many like me

I'm planning a trip with a 13 hr flight & did a 'test run' a few weeks ago with a 2 hour flight. I survived, but only just. I wish I had found this site earlier- but so thankful to have found it now

I have PTCRPS of my cranial & facial nerves from a serious accident a few years ago. I have been in too much pain to do anything other than just trying to get thru each day. But I have now started to improve & trying to use my time to find ways to help myself, as no one cares as much as our selves.

The points given are fantastic & the 1 I would like to add is with the help of your Dr, increase your meds for a few days before, then taper off. I used ear buds & noise cancelling headphones as well. But I used them before my accident & I swear by them as they really do make a difference on the long haul flights- but make sure they are good ones.
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