Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-09-2013, 09:30 PM #1
GreatGram GreatGram is offline
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Confused Rsd/CRPS and the use of Ketamine infusion.

My pain management Dr. has referred me to a Dr. at Cleveland Clinis for ketamine infusion. Has anyone else done this? What was your outcome?
New to this so I don't know what tags are.
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Old 09-10-2013, 03:42 PM #2
snowlily snowlily is offline
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Quote:
Originally Posted by GreatGram View Post
My pain management Dr. has referred me to a Dr. at Cleveland Clinis for ketamine infusion. Has anyone else done this? What was your outcome?
New to this so I don't know what tags are.
Hi gram, Yes i have adhesivecarachnoiditis & i havent had ketamine but have read many stories of people who did. Mostly in the UK, Canada & australia but a few in U.S. but not on insurance. Im am SO interested in the details of your procedure, dr, etc.
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Old 09-11-2013, 01:26 PM #3
alaska49 alaska49 is offline
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I have been having the ketamine infsuions for 5 years now and they have been my saving grace. I started with the everyday for 10 day out patient then went to 2x a week for 5 weeks then because my RSD was so bad went to once a week for 2 years normally its just for a month then moved down more. Then I went to once every 2 weeks to once a month now its every few months or if I am in a bad flare. I havent had any side affects most sleep during the infusion. I dont know about other insurances but mine and all my friends insurances pay for it as its no longer an experimental treatment. With the ketamine they started me on 60mg then moved up in 4 days to the amount I could tolorate which was 160mg everyone is different on the amount some go to the max which is 300mg. I also have ketamine nasal spray and ketamine lozanges which also has been a great help because of them I dont need the infusion as often. If you need anymore info let me know.

Sam
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