Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-13-2013, 08:54 PM #1
Allanira Allanira is offline
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Join Date: Feb 2013
Location: NM
Posts: 318
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Allanira Allanira is offline
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Join Date: Feb 2013
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Angry Been a long time since posting.

Its been a long time since I posted on here. I am now 24 wks pregnant and still having pain. Not taking any meds except a Norco 5/325s every now and then whenit gets to painfull even to breathe. I wish they could find a real cure for this. Even being pregnant doesnt put you in remission. I have finally gotenmy records from the MTF so I can start refiling for VA disability. Now I need to get them from my PM dr and really get this going. I have tried to do a lot more research about crps. Dang this "disease" suck hard old boogers. I have recently had someone tell me because I am not on my cane all the time now thenI don't have anything wrong with me. YeahI wish. They also said that Im just trying to get sympathy and am saying its worse than it is. Like I would fake this. When I try my hardest to get through till my sons nap time soI can break down just to do it again at bed time. Im even scared to take a shower or bathe my son without my husband in the house incase I can't get up. My poor goofy idiot dog is about to get banished to the yard or rather laundry and yard because I keep hurting myself on her. Its not her fault. Shes just like my 2 yr old. They dont know that they hurt you. I want to have that brat girl in the house. I love her even if she is an idiot. Oh yeah the awesome thing about ( yes this is my sarcasm coming out some) I think this is getting into my left foot now.
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Old 09-14-2013, 03:58 AM #2
Brambledog Brambledog is offline
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Brambledog Brambledog is offline
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Hi Allanira,

That must be rough to be pregnant with CRPS and no remission, especially with a two year old, your pain levels must be horrible coping with everything. I'm sorry you aren't getting much relief. Hang on in there though and hopefully your symptoms might ease a bit once you've had the baby and your body isn't dealing with so much at one time. Have you tried Epsom salts? They can help with some of the burning pain (in a bath or wrapped in a damp cloth) and should be ok to use in pregnancy (maybe check with your doc or nurse).

I can so relate to the goofy idiot dog We have a spaniel and she is a complete muppet, always manages to get right under my feet and nearly kill me on a daily basis. One day...lol.

Take care of yourself and keep going as best you can. Us mums have it tough enough anyway, without adding CRPS. You are doubly amazing

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 09-14-2013, 05:41 AM #3
Allanira Allanira is offline
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Location: NM
Posts: 318
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Allanira Allanira is offline
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My main problem are idiot drs. My PM won't touch me while pregnant, and my OB keeps telling me try tylenol. At the rate I would take that I would possibly kill this baby and myself in the prosses. I "stubbed" my little toe and the pain from it has me almost blacking out. Yet even with CRPS and pregnancy they said its not a big enough thing to go to the ER. I am surrounded day in and day out with idiot drs. I can't wait to move out of this area. 1 more month and hopefully get to drs that know what they are doing. I am just tired of them telling me that its not as bad as I'm making it out to be. Do they honestly think I want to hurt? Do they honestly think I dont want to play with my son and see his awesome smile? Oh but no worries, I'm just making this up to get attention. Hell if I want attention I have a child and goofy dog during the day and my wonderful husband after he gets off work in the afternoon. But because they can't visibly see whats wrong I'm faking it. Ugh, I can't wait to get back to my house and my area. I may hurt a little more and have to do a little more but I will be closer to a major city, and will have people around me that believe me. Even if my in laws are weird theh still believe me. So now that I got that out does anyone know a good PM in El Paso, Tx , or Las Cruces, NM? Thats the area Im headed back to.
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Old 09-14-2013, 06:13 AM #4
Brambledog Brambledog is offline
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Wouldn't it be great if just for a day you could give those doctors a "24 hrs of my life" experience? They would change their attitudes super fast...

Idiotic unsympathetic doctors are the bane of our lives. Maybe try printing off the CRPS info from a site like RSDhope.org or similar and taking it along to your next appointment, and ask them to read it as soon as they can. You can always hope that they might just be curious enough to read it!

Good luck with your move. Sounds like a hard but positive thing to move to a new area and hopefully get some better care. Sounds like the chances are you will

Glad your husband is a good 'un They are worth their weight in gold, bless their big old cotton socks. Lol.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 09-14-2013, 06:48 AM #5
Allanira Allanira is offline
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Allanira Allanira is offline
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Yes he worth his and my weight combined in gold. I just wish I could be worthy of him. He tries his hardest to make this easier for me but then I turn around and bite the poor man's head off. I feel like a black widow spider at times. Look but don't touch or talk to me. Don't think you're getting dinner tonight unless it comes from a can lol. He can tell what kind of day it will be or has been by just 1 tiny look in my eyes. He asks so little of me that when he comes home from work and the house is a mess I want to get up and clean and all he does is go to it. I hate this. I didn't marry him to have him go to work to support us then turn around and work at the house. I should be able to clean my own house. I should be able to get around without tripping over my own darn feet and taking care of my babies. Hell the easiest ones to take care of are the cats. All I have to do is put out food and water. He cleans the litter boxes and they love us. That goofy girl Maggie needs more. Food water and letting out to go potty. Would I give any of them up to whole again? No I love them all. They are my emotional support, and they keep my head up. Even when I want to tring all of them up by their ankles to get a little peace and quiet lol. I just wish some people would think before opening their mouths. I know drs do get some people that do fake or are trying to get a quick high with pain meds. But when you have someone that the meds barely take the edge off the pain and they go away smiling because they can walk that extra step or play with their child be happy for them, those are the ones you want to keep com7ng. They arent playing the system for free drugs. I hadn't left the house in 2 wks until yesterday. That's because I don't want people to point at the pregnant lady on a cane. I don't want them trying to say oh she's faking she just wants attention. I WANT a normal life. I WANT to run with my son. I WANT to be able to go out with friends and sit for more than 20 min without hurting. If I could give this away to someone then I would gladly do it. But thats a no go cause im faking it.
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