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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | |||
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lol.. me too!!!
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Thanks to all who take the leap and share on this forum!! Tessa |
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"Thanks for this!" says: | Vrae (09-19-2013) |
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#12 | ||
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I took pride in my work. I worked hard at doing it and then having it taken away by this does give me a sense of loss. I don't like not having something physical to do. All the jobs that I've had that I felt complete doing were physically demanding. I had to think and do stuff physically. Now this dang beast won't let me and I'm not talking about my goober boy either. I am really irritated about that. There won't be anymore goin out and building a shed or greenhouse which I really want on my land. I will have to watch others do it. I'm a physical person. I hate having to give my husband the shopping list to get groceries. I hate not being able to clean my house and steam clean my carpets, or get down on the floor and play. We all have those thoughts I know. Some of us can't even walk and have to use a wheelchair. I am one of the luckier ones to just have to use a cane. It still sucks. But we WILL get through it.
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#13 | |||
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"Brampage" LOVE IT!
Hey Bram, if you get to be the doty aunt, I'm older than you so I get to be the "Grammy". That's what my g.daughter calls me. I wear kitty socks and sneak the pets treats too ![]() I agree with the thought that we are like a family on here. I couldn't have endured this with out all of you. We all share what we learn and experience along the way in hopes that it may help someone else. However, of course not everything works the same for everyone. I've offered support and have literally sat here and cried for some of our family on her. I've wished I could reach and hold a hand or hug someone. Thinking that I may be helping someone else on here with their frustrations helps give me a sense of purpose if that makes any sense. I truly apologize if I've ever expressed anger toward anyone on here! I've had a few rants lately I know and I'll try to keep them in check. I appreciate all the support, just to know someone is "listening" helps. You know with a simple "hang in there" or a huggy face. ![]() |
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"Thanks for this!" says: | Brambledog (09-20-2013) |
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#14 | ||
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That's why we are all here to help and support each other. Finally my ob is taking me serious about my crps. He wants my recordsmfrom my pm so he can read up and said he wasn't as familiar with itmas he would like. Yes! Chalk it up to another one willing to learn. So this has been a good day even if I hurt and I still have a charlie horse in my calf lol.
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#15 | |||
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![]() Bram ![]()
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | AZ-Di (09-20-2013) |
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#16 | |||
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The biz: It crushed me when we first began to wind down. I still have moments that I just can’t believe that it’s ending, but it is a HIGH stress / pace occupation. Which oddly enough was one of the things I was okay with, but I can’t take thousands and sometimes hundreds of thousands of dollars from anyone and not be able to deliver. My brain just can’t operate at the level it used to either. Be it the drugs or the CRPS or whatever, it became embarrassing for me and impossible to keep pace. We have had many clients who are law firms. One of which was Denver’s largest personal injury firms. Never did any court videography, but it really just isn’t possible for me to be up and on my legs anymore. And this cognitive stuff, well.. . it’s just too much. On the upswing (Lord knows I’m trying to find some), in about six weeks I should be able to put this last client to bed and that will open me up to do whatever I want to do, whenever I want to do it. I am looking forward to that freedom. I am hoping this next spring I can work on some works of love. Perhaps some kind of docu. I would really like to do something for us, all of us. I would like to try and give back to this community of people who desperately NEED a voice, fundraising, PSA's for the general public and doctors who don’t have a clue what CRPS is… something... I want to do something like that. Just haven’t nailed down what yet. But I’d be lying if I didn’t say that I have looked at all the equipment we have and have thought that it’s time to sell it. I just can’t bring myself to do that yet. Thanks for the response Tessa!! |
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"Thanks for this!" says: | AZ-Di (09-20-2013) |
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#17 | |||
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LMAO
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"Thanks for this!" says: | Brambledog (09-20-2013) |
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#19 | |||
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"Thanks for this!" says: | AZ-Di (09-20-2013) |
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#20 | ||
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Man y'all are making me laugh at some of this stuff.
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