I feel bad that I havent been around here as much as I should, but I consider everyone here a family to me for sure! I have met some really good people here that are now really really close to me.

I too have laughed and cried, and received some of the best advice ever right here.

AS far as the anger thing....it seems it is spread far and wide. It seems everyone everywhere are super on edge. And lately it seems to be on the increase.

Oh....and I am going to try and get in here a lot more then I have been

There's fudge everywhere in England lol we love it! And toffee, and barley sugar, and mint imperials, and chocolate limes and.........

Bram (laughing hysterically )

Oh man! Don't remind me! I miss it. I also miss this fish and chips place in I think its king something on the sea. Ugh I don't get descent fish and chips here, but then again im in a landlocked state. The confectioners and fresh fruit and veggies.... ok ok stopping there. My mouth is watering lol. They won't send us back over there though, because of my CRPS. The boogers.

How a person responds to their illness will change over time and depending on their circumstances.

And therapy can be very helpful for the multitude of stressors that come along with RSD/CRPS.

Please keep in mind that not everyone has financial stability, a strong support base, adequate medical care, etc.

You might find yourself struggling with anger (or have another unproductive reaction) after 3 years, 5 years, 10 years, or even 20 years... It's impossible to predict how you'll be reacting in a few years.

Thats true Lit_love. Its when I see people practically yell at people almost like a fanatic or over zealous zealot that it makes me wonder about them. I went undiagnosed for almost 10 yrs. Its been just recently that I have been able to get info. When undiagnosed I was frustrated and angry because none of the Dr's I went to believed me about the amount of pain I was in and said it was all in my head and I was just an addict looking for more hydrocodone. Man if I could get by with taking a tylenol or 2 every now and then I would. If I could do with putting a bit of ice on my knee I would. I pushed through this long and finally know WHY I hurt. It was a relief to find out why and know I wasn't addicted to pain meds and know I wasn't going crazy and wanting attention. I really hurt. The Dr's finally saw that I really hurt and wasn't "playing" at it. I can understand people being angry about having this beast/monster of a disease. I just don't get why they go big time fanatical on someone that asks a question or is trying so see how others think about a therapy. I guess I just don't get fanaticism, well except religious fanatics. I was raised old fashion and we don't push our ideas on other people. Now since I can't do any of the therapies for another atleast 15 wks I am gathering as much info as I can. I already know when this little one comes I need a GOOD epidural going. I also know that most of the drug therapies can be secreted in to breast milk. I am going to have to get as much info as I can so I dont hurt this little one just like I wasnt on any therapies for his brother. I want to help, and I need help, not fanatics pushing their views onto me or any of us. I know I went in to more info than I have before on this post but hopefully I finally got what I have been seeing and reading out there. Yes this disease hurts physically as well as emotionally. It hurts us and all our family and friends. I wish it didn't. I wish I could hide how much I hurt from my sons and husband but I can't. Its written all over my face and body. I wish NONE of us had to suffer. But with encouraging each other and helping each other we help ourselves. We need to band together to get the word out there and have this problem as well known as arthritis and fybromyalgia. That way other drs learn and can help us more. With us being angry and having infighting it will just tear us down. We need to be determined that this gets the attention and research we need them to do to help us and others like us. I am not saying we need to throw ourselves into everyones path and say I HAVE CRPS BUT NO ONES ABOUT IT BECAUSE WE ARE JUST CONSIDERED ADDICTS. What I am saying is we do need to get the treatments, and talk to other researchers about finding more answers for this disease. When I reapply for VA disability I am going to start talking to them about doing more research about it also. They don't even have a separate rating for this. They have it under patello femoral syndrome and musculoskeletal, but nothing for CRPS. They even rate hang nails but not this. Lets not get angry at each other get angry at the lack of knowledge and the system that makes it so hard for us to get treatment. Hope I made sense in this post.

People that are desperate can be easy to manipulate. There are many unproven therapies that we're targeted to try. I'm not willing to be a guinea pig for expensive and/or potentially dangerous treatments, but there was a point that I was--in fact, my condition was permanently exacerbated by one procedure shortly after being diagnosed. So, sometimes, some of us react and get protective when we feel newbies are being potentially dangerous advise. Even if they waste time and money on a treatment that's questionable at best, but doesn't harm them more, they might miss their window for remission by not pursuing treatment that has had results.

Very true LitLove. Very true.

Bram.

Finally some answers. I was desperate to find out why I hurt so I can understand that explanation. I'm not that easy to manipulate. Shoot my husband has to explain somethings to me before I will do them lol. I guess im a born skeptic or something. The things I believe in unquestionably are my love of God, family and friends. I want to research everything before I do anything. I have reseached most of the treatment options that are out there. I can't take the amytriptiline because it gives me mouth sores so bad I cant eat or drink. I was taking gabapentin but took myself off it because of pregnancy. Now its a matter of figuring out what is the right treatment for me. We are human and what one person can do is different from what another can do. Ugh im chilled time for my coffee, and my electric blanky lol.

You are so correct I need this group for uplifting we all are fighting something Im finally letting go of some of my anger and working on letting it all go I want to be my old self as much as I can.Thank you