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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-12-2007, 12:20 AM | #11 | ||
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Was listed in wrong place.
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05-12-2007, 09:45 AM | #12 | ||
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I was going to tell you that if you like the warmth, cover the water while it steeps in the wrap to keep it warmer. Hope it helps..... By the way--Becca is having-dare I say- a great week. She is starting to walk without her crutches and is taking a couple classes at school. She has been out since Christmas so this is pretty cool. Only about 18 days left of school, but who is counting--(Can you tell I am a teacher!)
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05-12-2007, 09:57 AM | #13 | |||
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Hey RSD mom
Thanks!! Ah, it's called clingfilm over here... I will definetly try it - and with a covered pot lid! awesome, thankyou! LOL! did guess you were a teacher by that bit!! hey, it's just as bad for the students - I am on count down to end of term and attempting to get my liver in shape for end of fresher year at uni (when all my mates move out of halls)... Really glad Becca has gone in though! and managing without crutches that is so awesome YaY! Love Froggsy xxxxxxxxxxx PS - What do you teach? |
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05-12-2007, 09:15 PM | #14 | ||
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Thanks for the suggestions. I did try the epsom salts today & it did help. My swelling gets worse when I am on my legs for longer than normal periods of time. I did pool therapy the other day & they seemed to be worse afterwards. I wasn't measuring my legs then so I don't know if they were more swollen or just felt like they were. I layed around all day yesterday and my legs were 3/4 inch smaller than the day before and feel better today - I've been able to walk around the house a little today. It's really painful for me to walk when they get really swollen. I'm going to see if I can find some arnica gel & comfrey leaf. Do those compression socks hurt? I already feel like I have tight socks on.
Thanks again, Linmarie |
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05-13-2007, 08:43 AM | #15 | ||
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My daughter prefers the diabetic socks sometimes when her pain is bad, sometimes she hates the feel. Depends on the day/time/anything. When it feels good, it is worth it!
She has had good relief with the comfrey leaf, and the arnica gel is pretty new. I definitely recommend trying the gel, like and new thing, in a test patch. Frogga-- I teach elementary (age 5-12) kids with special needs...several children with autism, downs syndrome, genetic disabilities and other kids who for a variety of reasons need help. I do think there was a reason I learned all about sensory issues in my job--sure has paid off in helping my daughter with her RSD as it is so sensory based at times.
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05-13-2007, 10:06 AM | #16 | ||
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To answer you honestly, yes! They do hurt, but they also work to keep the swelling down, so it's something you've got to do. I have signifigant allodynia -so anything touching me hurts, so you can imagine having your legs squeezed. IT HURTS! But they work, so...
You can get different compressions (I have "firm" 20-30 compression stockings, but could've went up the next size because my swelling does get severe). If you click here: http://www.jobst-usa.com/opaque.html and then under "compressions" there are the following numbers: 15-20 20-30 30-40 If you click on each one there are descriptions so you can read, based on how severe your swelling is, what compression size you need. You also need your measurements so that you can get the size AND compression you need. I'd suggest going to a medical supply store, let them measure you and help you get the correct size. Or, if you can get them online cheaper sometimes you can get a person at the medical supply store to get your measurements for you. Either way, if you mail order, buy online, or at a medical supply store; see if you can get your doctor to write you a prescription for them, so that the insurance can pay for them (or at least some of them). Hope I helped! Here is some helpful info: Quote:
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05-13-2007, 02:25 PM | #17 | |||
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Hi Linmarie! Welcome aboard. I too have RSD in started after my Carpal tunnal surgery (I was dig. last month) I have icey cold hands fingers, swollen hands, fingers, wrist. the RSD has now spread to my shoulder.. ugh!! anyway, can you ask about wearing diabetic hose(socks) for the sypmtons you described?? I wish you all the best! Love, Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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05-13-2007, 07:09 PM | #18 | ||
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Are the diabetic socks going to have a tight enough compression? I think it all depends on how much your feet swell, to decide whether or not diabetic socks will work instead of compression stockings. For signifigant swelling, I personally would recommend you wear compression stockings- one of the few things that has helped with swelling.
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07-27-2007, 10:43 AM | #19 | ||
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Swelling of the legs and feet can be caused by many things. If you want to try support socks, make sure they are gradient compression, providing more pressure at the bottom and less at the top to move excess fluids back to the heart.
Good Luck Last edited by Curious; 07-28-2007 at 12:56 AM. Reason: link removed |
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07-27-2007, 08:21 PM | #20 | ||
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Are you trying to sell the socks?? Do you happen to know anything about RSD? Last edited by InHisHands; 07-28-2007 at 06:51 AM. Reason: removed the link... just like the mod did in the above post |
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