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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-26-2013, 12:11 PM | #11 | |||
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"Thanks for this!" says: | RSD ME (10-08-2013) |
09-26-2013, 01:08 PM | #12 | ||
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I take hot baths because water pounding on my knee and leg hurts. I cant even go out in the rain anymore lol. We do what we need to though. Keep smiling.
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"Thanks for this!" says: | RSD ME (10-08-2013) |
09-26-2013, 02:03 PM | #13 | |||
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That is great that you asked. I actually read a blog where a woman who has RSD from a work injury who was able to get a endless pool installed through a Workmen's Comp claim.. so it can be done but, I sure it takes persistence and a willing physician to help make it happen. The benefits would be so great!! Seriously we should all have one
I can only imagine what how water would feel on that area - I'm sorry you endured such an easily avoidable problem. When I read your story I was so angry at what you were told.. seriously. I hope you have spoken with a lawyer about this. Anyways.. good luck and I do hope you find some pain relief at times. Kindly, Tessa |
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"Thanks for this!" says: | RSD ME (10-08-2013) |
10-01-2013, 01:19 AM | #14 | ||
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We got a hot tube because we thought it would be therapeutic for me. It was usually too hot for me and if I did get in, I couldn't stand it for long. But for me the bigger issue was that I was afraid of slipping or falling getting in and out. My balance sucks since ice had my RSD. We had steps but there was no hand railing. I'm a total puss, so, it ended up being a huge relief got my husband instead of me. I'm afraid of being in the tub. Right after I got RSD ad and was recovering from the surgery that started it, I decided to take a warm bath. I wasn't able to get out because I couldn't use my right arm and I was terrified of sloping and my husband was out of town. I hate how the shower feels and it's taken me almost 10 years to build up the courage to take a shower almost every day, but I'm afraid of the tub and the hot tub. I want a warm pool with steps inside and outside. HAHAHA, set me up at a spa, LOL. I do wish the hot tub had worked for me. Glad for those of you that it does work for. I miss the relaxing feel of a warm pool or tub. So relaxing. That would be where I could actually relax and sleep, in warm water.
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"Thanks for this!" says: | Brambledog (10-01-2013), RSD ME (10-08-2013) |
10-01-2013, 03:19 AM | #15 | ||
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That's a really good point Syl, it's not just the thing itself that helps, but how it is set up for us. I too am very scared of slipping in any kind of wet - if I could have a hot (warm lol) tub I would think a lot about how it was put in.....maybe it could be sunk into the ground, and a railing put in? Perhaps they can be modified in terms of extra grip on the steps etc?
Good point and you've made me think about more than just 'getting' the things I want.... Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | RSD ME (10-08-2013) |
10-08-2013, 04:23 AM | #16 | |||
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I have the chills and goosebumbs but what about hot flashes? I love the hot tub just sometimes have trouble getting in there with my sore hips
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10-08-2013, 11:11 AM | #17 | |||
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Re; the hot tub and hip issues. After 6 major hip surgeries and my love for the warmth of the hot tub, I think I finally found the easiest way to enter the tub without causing pain. I park a small stool/ladder against the edge of the tub and then sit on it with my back facing the tub. I then raise myself one level at at time until my bum is sitting on the edge of the tub. I then use my towel as a sling (which is under my leg) to gently pivot myself around facing into the tub and then lower myself into it. At least for me this is the only way I could get in especially early on in my recovery after surgery when I had so many movement restrictions from my doctor. I hope that helps you in some way! |
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"Thanks for this!" says: | RSD ME (10-08-2013) |
10-15-2013, 01:00 AM | #18 | ||
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Warm water does me a lot of good; especially hot tubs.
The jets directed at my arm, elbow, and neck might be beneficial and feels good. |
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"Thanks for this!" says: | RSD ME (10-15-2013) |
10-23-2013, 02:02 AM | #19 | ||
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i did not read all of the above posts so if somebody mentioned this already i apologize.
if you want to try something for your symptoms and do not want to get wet, try cocooning yourself in a warming blanket (electric blanket). if you think you are going to start sweating then pull the blanket off. just remember certain medications do not like heat such as patches or the like. if you absolutely want to try a hot tub then turn the temp down as close to your body temp. most hot tubs are well above 102 degrees and that can cause problems with crps. the other thing to remember is a hot tub is different from a bath because a hot tub has a heater that keeps that temp the same. a bath starts out hot and gradually cools. good luck
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Hoping you feel better, ALASKA MIKE ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004 |
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"Thanks for this!" says: | Brambledog (10-23-2013), Djhasty (10-23-2013) |
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