Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-26-2013, 12:11 PM #11
jmcclellan's Avatar
jmcclellan jmcclellan is offline
Junior Member
 
Join Date: Sep 2013
Location: Small town outside of Jacksonville Fl
Posts: 9
10 yr Member
jmcclellan jmcclellan is offline
Junior Member
jmcclellan's Avatar
 
Join Date: Sep 2013
Location: Small town outside of Jacksonville Fl
Posts: 9
10 yr Member
Default

Quote:
Originally Posted by zookester View Post
I honestly don't know what I would do without the hot tub!! When pain is out of control or sleep has been deprived for far too long.. I head straight for the hot tub, it is soothing and relaxing for both the body and mind. I think anyone with RSD/CRPS or any other movement disorder should be gladly given one through their insurance policies. ** For anyone wearing a trans-dermal pain patch caution should be taken when using hot tubs, saunas and Jacuzzi baths.

Regarding the goose bumps brrrr - I get them randomly as well and also get teeth chattering whole body shivering during what should be comfortable temps.

Judy - Anything that you think might make you feel good by all means do it for yourself! If the warmth of a shower feels good then a hot tub should also. Personally I loathe showers anymore because the pressure of the water causes significant pain so I tend to take baths now instead more often than not. If you haven't tried adding epsom salt.. ad a couple of cups to a warm bath, turn down the lights and relax for 20 min or so.. it is amazing for most.

Cheers,
Tessa
Thank you so much for your response I called the Ins, company this morning and I bet they are still laughing about me asking if they would help pay foe one lol,I don't like showers because where the frost bite occurred that caused 3rd degree burns the water running across that area is awful I look like a contorshanist my spelling is awful lol anyway thank you all.
jmcclellan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (10-08-2013)

advertisement
Old 09-26-2013, 01:08 PM #12
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default

I take hot baths because water pounding on my knee and leg hurts. I cant even go out in the rain anymore lol. We do what we need to though. Keep smiling.
Allanira is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (10-08-2013)
Old 09-26-2013, 02:03 PM #13
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

That is great that you asked. I actually read a blog where a woman who has RSD from a work injury who was able to get a endless pool installed through a Workmen's Comp claim.. so it can be done but, I sure it takes persistence and a willing physician to help make it happen. The benefits would be so great!! Seriously we should all have one

I can only imagine what how water would feel on that area - I'm sorry you endured such an easily avoidable problem. When I read your story I was so angry at what you were told.. seriously. I hope you have spoken with a lawyer about this.

Anyways.. good luck and I do hope you find some pain relief at times.

Kindly,
Tessa
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (10-08-2013)
Old 10-01-2013, 01:19 AM #14
Sylmeister Sylmeister is offline
Junior Member
 
Join Date: Aug 2013
Location: Albuquerque
Posts: 60
10 yr Member
Sylmeister Sylmeister is offline
Junior Member
 
Join Date: Aug 2013
Location: Albuquerque
Posts: 60
10 yr Member
Default

We got a hot tube because we thought it would be therapeutic for me. It was usually too hot for me and if I did get in, I couldn't stand it for long. But for me the bigger issue was that I was afraid of slipping or falling getting in and out. My balance sucks since ice had my RSD. We had steps but there was no hand railing. I'm a total puss, so, it ended up being a huge relief got my husband instead of me. I'm afraid of being in the tub. Right after I got RSD ad and was recovering from the surgery that started it, I decided to take a warm bath. I wasn't able to get out because I couldn't use my right arm and I was terrified of sloping and my husband was out of town. I hate how the shower feels and it's taken me almost 10 years to build up the courage to take a shower almost every day, but I'm afraid of the tub and the hot tub. I want a warm pool with steps inside and outside. HAHAHA, set me up at a spa, LOL. I do wish the hot tub had worked for me. Glad for those of you that it does work for. I miss the relaxing feel of a warm pool or tub. So relaxing. That would be where I could actually relax and sleep, in warm water.
Sylmeister is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (10-01-2013), RSD ME (10-08-2013)
Old 10-01-2013, 03:19 AM #15
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

That's a really good point Syl, it's not just the thing itself that helps, but how it is set up for us. I too am very scared of slipping in any kind of wet - if I could have a hot (warm lol) tub I would think a lot about how it was put in.....maybe it could be sunk into the ground, and a railing put in? Perhaps they can be modified in terms of extra grip on the steps etc?

Good point and you've made me think about more than just 'getting' the things I want....

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (10-08-2013)
Old 10-08-2013, 04:23 AM #16
chrisandrob4ever's Avatar
chrisandrob4ever chrisandrob4ever is offline
Junior Member
 
Join Date: Aug 2012
Location: Kentucky
Posts: 24
10 yr Member
chrisandrob4ever chrisandrob4ever is offline
Junior Member
chrisandrob4ever's Avatar
 
Join Date: Aug 2012
Location: Kentucky
Posts: 24
10 yr Member
Default

I have the chills and goosebumbs but what about hot flashes? I love the hot tub just sometimes have trouble getting in there with my sore hips
chrisandrob4ever is offline   Reply With QuoteReply With Quote
Old 10-08-2013, 11:11 AM #17
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

Quote:
Originally Posted by chrisandrob4ever View Post
I have the chills and goosebumbs but what about hot flashes? I love the hot tub just sometimes have trouble getting in there with my sore hips
lol.. let me know when you find out how to deal with hot flashes!!

Re; the hot tub and hip issues. After 6 major hip surgeries and my love for the warmth of the hot tub, I think I finally found the easiest way to enter the tub without causing pain. I park a small stool/ladder against the edge of the tub and then sit on it with my back facing the tub. I then raise myself one level at at time until my bum is sitting on the edge of the tub. I then use my towel as a sling (which is under my leg) to gently pivot myself around facing into the tub and then lower myself into it. At least for me this is the only way I could get in especially early on in my recovery after surgery when I had so many movement restrictions from my doctor. I hope that helps you in some way!
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (10-08-2013)
Old 10-15-2013, 01:00 AM #18
Imahotep Imahotep is offline
Member
 
Join Date: Feb 2007
Posts: 606
15 yr Member
Imahotep Imahotep is offline
Member
 
Join Date: Feb 2007
Posts: 606
15 yr Member
Default

Warm water does me a lot of good; especially hot tubs.

The jets directed at my arm, elbow, and neck might be beneficial and feels good.
Imahotep is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (10-15-2013)
Old 10-23-2013, 02:02 AM #19
ALASKA MIKE ALASKA MIKE is offline
Member
 
Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
ALASKA MIKE ALASKA MIKE is offline
Member
 
Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
Default

i did not read all of the above posts so if somebody mentioned this already i apologize.

if you want to try something for your symptoms and do not want to get wet, try cocooning yourself in a warming blanket (electric blanket). if you think you are going to start sweating then pull the blanket off. just remember certain medications do not like heat such as patches or the like.

if you absolutely want to try a hot tub then turn the temp down as close to your body temp. most hot tubs are well above 102 degrees and that can cause problems with crps. the other thing to remember is a hot tub is different from a bath because a hot tub has a heater that keeps that temp the same. a bath starts out hot and gradually cools.



good luck
__________________
Hoping you feel better,

ALASKA MIKE
ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004
ALASKA MIKE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (10-23-2013), Djhasty (10-23-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 11:35 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.