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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-25-2013, 09:35 PM | #1 | ||
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Junior Member
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My 15 yo daughter had her first 3 treatments of CALMARx therapy and it is amazing. She has had this disease for 3 years and has had every therpay/treatment/medication available by her MD's at Stanford/UCSF/Sacramento, they all said that there was nothing else that could be done, and wanted to keep giving her high dose IV ketamine, in the hospital, in ICU for 14 days. This messes with her brain so much, after the therapy she is aggitated, forgetful, depressed and the pain returns within a week, TOPS! With CALMARx she has regained the color in her feet and legs, the dystonia in her toes is subsiding, she is wearing shoes, weaning off her medications, laughing and joking around, just like before she was ill with CRPS. PLEASE research this therapy if you too are ready to get well. It is a miracle
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09-26-2013, 10:54 AM | #2 | ||
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I'm really pleased for your daughter that she is getting better but this is no miracle! It is truly nothing more than a TENS machine. If you don't believe me, have a look at the formal FDA approval for the medical device they are using. Its public information available on the FDA website
It is a simple, multi-channel TENS machine and is identical to existing TENS machines already on the market and made by other companies. It's just sad that some people have paid so much money for a treatment that isn't revolutionary and is delivered by a very cheap, long-established piece of medical equipment that has been in existence for a long time. What is a miracle, is that they can get away with charging $0000 for this. |
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"Thanks for this!" says: | Brambledog (09-26-2013) |
09-26-2013, 11:00 AM | #3 | ||
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Its great shes doing so well. I am very happy for her. Remember not all treatments work the same for everyone with rsd. Shoot I'm just relieved to actually know that I'm not crazy or addicted to drugs and my pain is real to my drs now. I finally got a diagnosis at 9 yrs 5 mo. After getting this. I am doing the research I need to to be an active participant in my care. I have heard that calmare works for some and not others. Tell her to keep up the great spirit and you also. Y'all are in my prayers that she goes into remission.
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