Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-26-2013, 10:36 PM #1
Allanira Allanira is offline
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Default What a "great" night.

This is gonna be a great night. I am hurting so bad and really can't take anything for it. I did moist heat with the heating pad, epsom salt soak, and finally broke down and took a norco. I hate pills. I hate pain. Its worse than being tied spread eagle naked over an angry ants nest, with the mean little boogers gettin you . My leg from mid thigh down to my toes except my toe nail beds is red and swollen, my toe nail beds are blue, I itch but it hurts to scratch. So its gonna be a long night then a long day tomorrow with hopefully a nap when goober goes down for his. This sucks. Shoot I cant even put lotion on cause it hurts to touch. Besides lotion wouldn't help my scaly drynes lol. I know Im venting and I'm sorry. Its tough to be positive all the time. I just wish they would find a treatment for preggos like me for times like this. Now Im gettin the tar kicked out of me by my newest goober boy. Barometric pressure is dropping as Vrae knows. She's hurting too. Good thing is I finally filed for ssd benefits tonight.
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Old 09-26-2013, 10:57 PM #2
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Well I got a gramd total of 30mins sleep before this damn thing woke me up 6hrs later and there is still no chance of me sleeping
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Old 09-26-2013, 11:02 PM #3
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I wish they would find a treatment for all of us preggo or not! :/
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Old 09-26-2013, 11:08 PM #4
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I'm sorry again youre having a bad night too. I take voltaren gel for my wrist when it hurts becuase of the weather changes and it seems to take the edge off. I don't know if you can take it though while pregnant. My pm has to prescribe it for me. Maybe you can ask yours if you can take it while pregnant. I feel so bad for Vrae too. I hope she has a better night tonight. And good luck with your ssdi benefits. I can't drive because of all the pain meds I take and I can't grasp the steering wheel with my right hand so I don't drive anymore. I can't work because I'm in too much pain and too drugged up and my right hand doesn't function well. After my rsd started, I was on disability for 6 months and then my dr thought I should apply for perm disabilty. I've been on it for a few years now, but am just getting worse because of the spread and also emotionally its taken its toll on me. I found a lawyer when first applied, who specializes in SSDI when I received a big pkg of forms from SSDI to fill out and he helped me and worked on contingency. I received SSDI shortly thereafter. Good luck with your claim and I hope you have a better night.
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Old 09-27-2013, 05:53 AM #5
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Sorry it's been such a bad night for you Allanira, times like that this thing is just hell and makes you completely miserable. I hate that feeling of powerlessness and hopelessness, where nothing can help and you just want to be spark out of it until the storm passes...

I hope you feel a little better this morning and things have calmed down. Hang on in there

Bram.
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CRPS started in left knee after op in Aug. 2011
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Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 09-27-2013, 06:09 AM #6
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I think I freaked my cats out lol. I was walking from the kitchen to the bedroom and they all three scattered like bugs when the lights come on lol. It just sucks. There isn't a treatment so we suffer. Most drs don't know what this is. Or what to do aboit it. Ugh I'm whining now. I feel like im doped up right now. I guess I'm not made for night life anymore lol. Keep smiling and stay positive guys.
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Old 09-27-2013, 03:28 PM #7
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Hi Allanira,

I hope you're having a better day today and that your cats are too! lol.
Hang in there. I know it's frustrating that most drs don't know what rsd is. Its bugs me too.
But try to hang in there and don't feel bad for venting. It's better than keeping it bottled up. That's what we're all here for.
Hope your night is little better tongiht.
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Old 09-27-2013, 04:47 PM #8
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Hi Allanira,
I sure hope you have a better night tonight! I can't imagine how brave you are to deal with and be pregnant!! That would sure lead to a ton more questions to pose to your Doctors huh?
How far along are you?

Yes, it does suck for you not being able to have meds. Would a topical Ketamine cream help or does that still get absorbed by your body?

For RSD in general, we should all start calling the Pepsi "refresh hope" number to raise awareness! I think it runs until Nov. 30th. I put a post on here about that and need to pull it back up.
Wishing you some relief!
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