NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Any other RSD sufferers in Argyll Scotland or rest of UK.? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/195020-rsd-sufferers-argyll-scotland-rest-uk.html)

cinders999 10-05-2013 06:58 PM

Quote:

Originally Posted by Kevscar (Post 1019947)
Cinders999 If you want to do something about that then please e-mail your MP. You will see what I amtrying to achieive and a suggested format on my facebook page
https://www.facebook.com/messages/#!/kevin.scardifield

thanks, sent you fb request & I requested to join a couple of the groups from there, Mandy

flora99 10-06-2013 02:26 AM

Hi Brambledog
Thats interesing your in Gloucetershire i use to live in Malvern,and know it well.
Dont apologise for being late you are a busy lady helping other people too!
I still havent decided to go ahead with the proceedure yet.I have another session of councelling next week,which i feel might help.
I am mindful of what everone has said re presenting myGP with as much info as poss,which i hope to do when i see her for an update fairly soon.
Yes i know i must try not to get uptight and upset because it will make my RSD worse,but its so hard to do that while im keeping thoughts about what i face in my concious mind
I normally coap by blotting it out as much as possible.
Too right about dont ask dont get!!
Big Hug
Flora

Kevscar 10-06-2013 02:28 AM

If you e-mail me RSDFighter@hotmial.co.uk I will seend you the protocol just as it is from the site you can then print it out to take.

flora99 10-06-2013 02:41 AM

Hi Kim
Thankyou for sharing your experiences with me!
You were v brave ,and im so pleased the surgury helped you and you didnt get spread!
The vitamin C thing sounds good.
I useto take vit C every day but had to stop because it irritated my gastric problems because its basically an acid.
I have heard of a gentle buffered version so i could try that.Ive never bothered to take it as my reflux is so bad that when its better i dont want to risk a flare up,but if it controls the spread ,and i take it for a short time before and after my proceedure if i go ahead.
Flora99 (kim)
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