I read this and thought of, well, all of us

http://www.londonpainclinic.com/comp...nary-approach/

I think it's a very good summary of the complexity of many issues we have to deal with....I read it thinking 'yes, yes...definitely yes, that's me'. Rare

Thoughts and discussion welcome

Bram

Oh thank you for sharing this with everyone; I strongly believe it is important to surviving both mentally and physically through the battle with CRPS.

It is so important to get a great team of medical professionals in place as soon as the diagnosis is made. This doesn't mean to put all of your faith in medical treatments (we all know most only offer marginal results) but having the support and encouragement from the 'team' especially when the myriad of side effects begin to appear can be a tremendous help.

My team consists of:

Internal medicine doctor - she helps me deal with the systemic affects of CRPS and helps me maintain good health throughout the rest of my body. She also coordinates referrrals to specialists when things arise that need a second look.

Physiatrist: To help manage mechanical/muscular issues and offers whole body PT guidance to enable me to keep moving without injury and further atrophy.

Chiropractor/Massage therapist: Very gentle adjustments as needed to keep my spine in good health as well as weekly massage therapy (not directly on the areas where hypersensitivity is an issue). They also work out trigger points and myofacial pain areas.

Pain Management: CRPS specialist who works together with the above practitioners to help me keep pain at a the most tolerable level.

Pain Psychologist: Works with me to find ways to cope with physical, social and emotional aspects of chronic pain. Acts also much like a counselor so that I can talk through things and find happiness/satisfaction in things I never considered before my life changed due to CRPS.

Orthopedist: Continues to be part of my care since CRPS II originated from orthopedic related trauma. Works directly with the physiatrist and chiro when signs of compensation or weakness are exacerbating pain or function.

Thanks again Bram!!

Much appreciated Bram! Very good find, it's very concise and accurate. Many good links on that page. I'm still reading.
Thanks for sharing!

NHS recommend a multi-disciplary team
http://www.nhs.uk/Conditions/Complex...Treatment.aspx
but as 95%of the medical profeesion have never heard of RSD/CRPS they will never read it unless we get Norman Lamb to take my steps

Nice article Bram. Sums us up pretty well. The isolation that we experience is probably the worse for us.