Nice Poem Bram. I hope you have a good night. Take care.

very moving, Bram!

My friend said this to me in 7 th grade and it just stuck
 

If i were a dog
and you were a flower
Ild lift up my leg
and give you a shower..
:)


ok its childish but It still makes me smile
.................................................. ..
ok an original.. Painman2009 c 2013..

The day has come, the days has gone
to sleep the night and face another one

Time is fast and Time is slow
be part of it all or watch it all go

So pray for you and pray form me
then whats done is done ,and is what will be.




>> not one of my best written <<

In the same ... vein ... (heard from a friend in my jr. high school days)


Blood is drippy
Blood is red,
But without it,
You'd be dead!



I don't know why it stuck in my head all these years!

:p haha SloRian! Thank for the two little funny ones, made me smile :)

I liked your original one too, I rather liked it...

Bram.

Late Lament
 

Late Lament

Breathe deep in the gathering gloom
Watch lights fade from every room
Bedsitter people look back and lament
Another day's useless energy's spent
Impassioned lovers wrestle as one
Lonely man cries for love and has none
New mother picks up and suckles her son
Senior citizens wish they were young
Cold-hearted orb that rules the night
Removes the colors from our sight
Red is gray and yellow white
And we decide which is right
And which is an illusion?

~ by Graeme Edge, The Moody Blues

Sorry painman, just realised that I forgot to thank you for your original poem you posted. I really liked it - it takes a lot of skill to fit so much feeling and thought into a short poem, but that was pretty impressive! Keep em coming :winky:

Vrae, thanks for yours - It's not one I recognise, always nice to find something new!

Take care everyone, and keep writing. I love reading your creations :)

Bram.

Do you feel that way too when you put on makeup? (if you wear makeup)? For me, it's always hard - I've aged at least 20 years these last 6 years since we moved to Arizona, so looking in the mirror is hard in itself - it reminds me of all the awful stuff I've been thru since moving. Also, putting on makeup symbolizes getting up out of bed (where you can at least groan in peace) and starting to force your body to do things that it doesn't want to do but most everyone else can do with ease. I really DO feel like I'm painting a corpse, but my daughter likes it, so I do it. I was worried the "poem" was pretty dark, plus I've never written poetry since I was forced to in school :D but it just kind of came out as I sat down and started typing, and one thing that's so helpful here is that people understand the dark stuff.

Yes I do :cool:. I've aged a lot in the last two and a half years. My skin has developed lots of dark patches and age spots, and I look like someone has taken my face, balled it up like a paper bag, and tried to smooth it back out! My hair has also got coarse, thinned a LOT, and has got very grey at the temples, sides and crown. I'm only 42! Before this, I used to think I was ageing quite well...:rolleyes: Being in pain all the time has a lot to answer for.

I wrote a bit of poetry in my late teens and very early twenties, but not since then. I've been writing a novel for a few years tho, and although mostly positive and hopeful, bits of that are dark. I'm a firm believer in getting the dark stuff out of your head - I used to write stuff down and then burn the paper. Kind of symbolic and healing. I like putting it in poetry though, as it requires more concentration and creativity too, so it's not just a dark emptying process but also the birth of something too. Even if that something isn't quite what you hoped by the end!!

Today I keep dropping things and having to bend down to pick them up. I can no longer do that quietly! Oh the joys! Some days I feel about a hundred, others only about sixty :winky:

Take care everyone and have a good day if you can.

Bram.

I Want To Live
By RSD RENEE

I want to live
I want to try
But when pain strikes
I want to cry

It hurts so bad
Why does it so
I wish I wish
The pain would go

I wish I wish
I'd feel okay
And that good health
Was here to stay

But here pain stays
Right here with me
I wish I wish
That it would see

I want to live
I want to try
So go away
And say bye bye

I like that Renee :) well done!

Bram.

Thanks Bram. It just popped into my head. I think it's the pain speaking! I like your poems too. They are really good. Hope you have a good night and a good day tomorrow.

OMG, I just posted my poem on another board I'm on (a literary discussion board) and I was told that idiots don't get sick because they're cheerful and too stupid to worry, and that's my problem. I just need to be cheerful, and things will be all right. I wonder if that also includes my son - if we're all cheerful about him, will he get his legs back?

Right.

O....M....G.... There speaks a bunch of people who have never been properly sick, had a loved one suffer from anything, or have enough humanity to feel sympathy for those who do. Must be great to live in their little, narrow world!

Ignore it and move on lol, they aren't worth worrying about. You are cheerful plenty of times - we all try to be where we can, that's what makes us such amazing, wonderful, bright, fantastic, humane, sparkly and cheerful people who get on with living despite a bucket load of crips thrown at us every single day.

:D

Have a good day.

Bram.

Oh wow SloRian, what the hell? :mad: Tell the “idiot” (the mentally deficient person) that responded to you that you were posting ART. Literature is the art of written work and is completely subjective and if they are participating on a “literary” board, then they would know that… right? And by the way Mr/Ms idiot, mentally deficient people get sick and depressed ALL the time since they possess the human factor. If all it took to be healthy was to be happy and sing zippity do da, well damn, we’d have cured every single ailment already. This person is living in some fantasy that the world is just rainbows and butterflies. Unreal!

:eek: Wow Vrae! Don't hold back! Calm down there girl, lol. If only we could send you over there to give them a good talking to :winky:

Deep breaths now.....in....out.....in.....out..... There. All better. :p

Bram.

lol .... don't mess with my CRPS cyber friends .. lol yes, all better now. :wink:

I know; one would think that on a literary board, they would have a bit of a clue. It's a discussion board on the works of JRR Tolkien (yes, I'm a Tolkien nerd :D ) but there's a writers' section where people share their original poems and short stories. It felt really good to put down those dark thoughts in words here, and I'm glad you guys understood, and I thought I would try it over there. However, I guess the RSD factor is more of an understanding thing than the literature factor. Plus, this one particular person isn't a regular and might not even know of my troubles. But still, that's NOT what you say to someone who is sick! and it CERTAINLY isn't true! At the least, I hope he has learned. A regular over there said that to her, it showed how much a mother does, even when it's hard, to show love for her daughter. That was certainly one of the themes of the poem.

Anyway, thank God for you all here! People that understand mean so much! I'll see if I can come up with a lighter poem next time. Mayibe about music - Bram, I've been playing my harp every day this week, and it's been really nice. It's hard to get up and creak over and set up, but once I'm there, it's really lovely. Are you able to play your cello with how bad your hands have been lately? I love the cello! I remember on a 9/11 memorial service, Yo-Yo Ma played a cello piece, and it was SO lovely ...

Hi SloRian, I got off of my Fear Thread and changed what I felt because I felt people were looking down on me and I was being too dark. So I ended up looking like a flip flopper who didn't know what they really felt. Well, I honestly felt the way I did when I was being dark on that thread. I don't enjoy feeling that way, but that's how I really feel. And if anyone takes offense to it, I'm sorry, but I have to be true to me.
I hope you don't lighten your poems or any of your other thoughts in the future if you just to please others. You should be true to yourself and post whatever you really feel dark or not. I understand your pain just like others who have this lousy disease. And trust me, you'll feel alot better if you post what you really feel rather than what you think others would prefer hearing. I learned that the hard way. From your friend RSD RENEE.

Aww, thanks Renee! I hope you don't feel too bad about that thread, though. I saw a bit of that thread and there seemed to be some misunderstandings, and it's a very sensitive subject. It really does help to talk about things, but sometimes this typed communication is really difficult!

Anyway, gentle ihugs and keep sharing :hug:

I couldn't agree more! Right on Renee! :)

SloRian - I'm so happy you've been able to play your harp so much :) that's fab! I've played Edward most days, although if my hands are very bad I've given him the day off lol :winky: I remember Yo-Yo Ma at that service. I think the cello has such soul and feeling, and there is a sadness, almost grief to it at times that other instruments don't have. It's very soothing.... The harp is a beautiful instrument, very calming - my husband and I have a CD of harp music, and we both love it to bits, I think it was the first classical music CD we got together (he didn't listen to classical before he met me!).

Renee - I know I've said this to you before lol, but stop apologising so much! :winky: That fear thread is a good and brave idea, and what each one of us thinks is as relevant as the others. We might not agree with each other, but we should be able to say so nicely and without causing hackles to raise. I think most of us manage to walk that line. Personally I found that discussion (most of it anyway :rolleyes:) really healing and helpful, and I was sad it stopped like it did. It certainly didn't make me feel bad or dislike you. And don't be so hard on yourself about giving in to that kind of emotional pressure, it's human to want to fit in and be liked. It was sad but understandable. As others have said - post what you feel, not what you want others to be happy with. As long as you stop short of being aggressive or taking offence where none was intended, then you have every right to post what you think and feel. I'd rather that than a board where we all spent our time agreeing with each other constantly and never hearing another side to a thought!

This is the only place where I can speak freely about my CRPS and its effects and know that I will be understood by real people who actually experience the same things and feel the same things. That's amazing. You're all amazing.

Right. Anybody fancy a delicious homemade chocolate and a cup of my best coffee?

Have as good a day as you can my friends :grouphug:

Bram.

ummm, YES! pick me! pick me! lol :p

Thanks Bram. I do want to say how I feel, but don't want to influence anyone to feel that way too. I don't know if what I feel is right, and would feel worse if someone copied me if I was wrong. And I don't want to lose the friendship I've made with all of you. But you're right, if I'm not honest than what's the sense in sharing my thoughts on this forum. I try to be positive, but sometimes it's just so hard. Like when the pain gets real bad. In the beginning I had more deep cold aching pains from my rsd. Now after two years I'm getting that plus burning pains. And it's now spread to my hands wrist, legs and feet and stomach and ears. My hands and feet are burning real bad right now (two days ago my hands were cold and my feet were burning) and it's all scaring the crap out of me because the last two times I told my pm dr about it, he said to exercise and take my pain meds. There has to be more they can do than just offer that adivce. And if there isn't anything left to offer, then how do I cope with this pain? I see my root canal specialist tomorrow morning for my second visit to work on my tooth, then I am getting xrays on my feet, (I asked my gp to give me a script for this) and then off to my psychiatrist for my follow up with him. Maybe he can offer some good advice for me. Anyway thanks again for all of your understanding and kindness. I hope you all have a good day today. I'm going to soak my feet and hands now because the pain is getting really bad. I understand what they mean by rsd and feeling the fire. Bye for now.
Oh yeah, I would love some homemade chocolate and a cup of your delicious coffee too. Thanks girlfriend!

I'm really glad I started up again :) It's really hard sometimes to make yourself get up and play when you're in a chair and finally a little bit comfortable, but every time I do do it, I end up playing for an hour or so and it's really nice. I love to make my own arrangements of pieces that I like. I generally do Celtic-style music, but now I'm working on arranging a lullaby ("Pretty Little Horses") and a spiritual ("I Wonder as I Wander") that I've always liked. And for Christmas, I'm going to finally get an iPad! The music apps are SO wonderful! I can't wait! I'll finally be able to get my adaptations down on sheet music because there are wonderful notation apps. I've been too lazy to hand-write them down before so I lose them, and that's frustrating when you've worked on it and come up with something that you really like. Anyway, thanks for sharing about Edward, because it really motivated me to get up and playing again :) Take that, you stupid pain and fatigue!!! Nyah Nyah!!! You can't make beautiful things like music ugly!!!

Yes, the cello definitely has that beautiful sad tone to it; just lovely. And also so soothing, as you say. It's really a lovely instrument. I really don't have much CD-wise for the cello except some Bach, IIRC; do you recommend anything?

BTW, everyone, please call me Rian; that's usually what I go by online, but I think it was too short a name here or something so I had to add on stuff before it. SloRian is really kinda awkward; Rian is what I prefer :) ANNNNND it's shorter to type for those with sore fingers :grouphug:

Hi Rian :):D

Wow, I'm impressed that you compose and arrange - I know exactly what you mean about getting it down on paper, I've lost so many really nice little pieces that I've worked on and then forgotten. I've got an iPad (I'm on it now lol) but I've struggled to find a good notation app. Mind you, it doesn't help that I've for the original iPad, and it won't accept some of the newer (and better) apps. I'll try it again though now you've mentioned it!!

Cello music....hmm...there's so much out there. I'm glad you've got the Bach, that's beautiful (it's been on a tv ad here in the uk). I love the Elgar Cello Concerto, particularly the Jacqueline du Pre recital if you can get it, she was such an amazing player. Another really lovely piece is The Swan by Saint-Saens - it's slow and beautiful, and I can just about play it :winky: (still working on it).

I'd love to try the harp one day, have a wonderful time with it today! I also find that once I'm started with playing, even if I'm having a bad day, I start to really get into it and time just flies. One of the benefits :winky:

Have a fab day,

Bram.

Hi heres something i wrote its my story of crps.
 

Feel the Pain By Michael Evans Nz

Life is like that one minute your here then your gone
The only difference is your moving and i am not

Going insane can you feel the pain
Going insane cant understand the pain
Going insane shaking like a leaf again
Going insane no one understands the pain

Then you take a killer and life feels alright for awhile
when you cant feel the pain and you think your in control again
Feel the pain as i lead my head forward again

Feel the pain
Feel the pain
Feel the pain and carry on again

Then you take some pain killers and you feel less pain
but your incohearent and dopey again

Feel the pain
Feel the pain
Feel the pain please make it go away again

Run out of room part two in next thread

my story of crps part two
 

Feel the pain part two by Michael Evans NZ

First it was in my elbow then in my forearm now its in my hand
and its in my shoulder and i can feel i moving up my neck
now its on the right side of my face and in my leg I am running out
of space.

Feel the pain
Feel the pain
Feel the pain in control again

Just a thought as you feel the pain i may look alright
from the outside but i am hurting like hell on the inside

Feel the pain
Feel the pain
Feel the pain that no one else can see again

Thanks for letting me join this site i hope you like my poem/song


copyright Michael Evans.

Hi :)

I was thinking as I read it that it felt more like a song! That's really good, definitely getting that feeling of the repetitive nature of the pain, and the last line sums it all up... So many thoughts in there that are right on the money. Keep writing! I don't know if it's possible to upload a soundfile lol, but I'd like to hear it sometime.

Take care and I hope you have a good day today.

Bram.

"Comes The Dawn"

After a while you learn the subtle difference
Between holding a hand and chaining a soul,
And you learn that love doesn’t mean leaning
And company doesn’t mean security,
And you begin to learn that kisses aren’t contracts
And presents aren’t promises,
And you begin to accept your defeats
With your head up and your eyes open
With the grace of a woman, not the grief of a child,
And you learn to build all your roads on today,
Because tomorrow’s ground is too uncertain for plans,
And futures have a way of falling down in mid-flight.
After a while you learn
That even sunshine burns if you get too much.
So you plant your own garden and decorate your own soul,
Instead of waiting for someone to bring you flowers.
And you learn that you really can endure...
That you really are strong,
And you really do have worth.
And you learn and learn...
With every goodbye you learn.

Author: Veronica A. Shoffstall

Hi
 

Hi thanks for reading it I dont have a song file for it i play guitar not sing trust me if i did u would leave and i can never seem to find the right chords for it so
its just as it is. I really like you poems too and i think you should right a book
of poems. they would help alot of people i believe.

Rock on Peace out:)

Skin
 

Music... for me it's angry music and how I feel about this damn disease. Thanks for letting me share. If you care to hear it, here's a link. http://www.youtube.com/watch?v=znH7lx2d3kM

Beth Hart - Skin

She combs her hair & cleans her face
Closes the door & kneels to pray
It don't matter that she's alone
beast or dragons she's going home
If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within My skin

She found today
So hard to say
I sweat the sheets
too tired to play
& it don't matter
cause I'm still alive
Beast or Dragons
won't make me hide
make me hide, make me hide,

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within, blisters within My skin

Another way
I just cant find the words to say
Cold where I lay
it's cold where I lay
bones cracked to clay
a killer's in the way
and hot is my shame
Fire pulls my veins
For never is my name
Forever in my shame
holy come heal me
solely, delivery delivery

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within...

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within, blisters within my skin

Cool
 

First time i have Heard Beth Hart and i have to say i like her
really soulful blues/Rock I am a fan

Thanks Vrae

Rock on Peace out Mike NZ

So glad that you enjoyed her. :) She is one of my favorite artists, and has been for about ten years now. Her record company has had her planted in Europe and I have yet to see her live. BUT! I am going to see a cat tonight who's collection of work is just as steller. His name is Marc Broussard and he's from the bayous of Louisiana. Check him out if you get a chance.

Have a great day you guys! x

Hi
 

That Marc Broussard rocks i like that Home song i just watched
on youtube he's a cool cat love his guitar riffs awesome Vrae.

Just Silly
 

This is not poetry - just silly thinking or REALLY DARK Humor!

I feel like RSD/CRPS is like some one has a"voodoo doll" of me that they torture. I mean the random types of aches & pains come out of nowhere like that.

Then for treatment? Let's throw the doll in different chemicals and see what happens?

I'm giving that a dark LOL AzDi.....:D

Bram.

ANGER, SADNESS PAIN

LOST INSIDE A STORM OF FIERY RAIN

MADDENED ACHING STRIPPED TO THE BONE

SCREAMING TO SEE

FAILING MY DREAMS

CRYING AND TORN FROM AN ICY FLAME

NO ONE CAN SEE

NOTHING LEFT TO DREAM

FLAILING FALLING LOST IN MY PAIN


By CRPS Songbird 2013

Songbird, that's powerful, raw stuff - very dark, but excellent writing. Wow.

Take care of yourself and I hope you sleep ok. Let's all hope for less pain tomorrow....:rolleyes:

Bram.

I think you meant Songbird but thanks lol