Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-04-2013, 06:10 PM #51
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I like that Renee well done!

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 11-04-2013, 06:58 PM #52
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Thanks Bram. It just popped into my head. I think it's the pain speaking! I like your poems too. They are really good. Hope you have a good night and a good day tomorrow.
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Old 11-05-2013, 08:06 PM #53
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OMG, I just posted my poem on another board I'm on (a literary discussion board) and I was told that idiots don't get sick because they're cheerful and too stupid to worry, and that's my problem. I just need to be cheerful, and things will be all right. I wonder if that also includes my son - if we're all cheerful about him, will he get his legs back?

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Old 11-06-2013, 03:46 AM #54
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O....M....G.... There speaks a bunch of people who have never been properly sick, had a loved one suffer from anything, or have enough humanity to feel sympathy for those who do. Must be great to live in their little, narrow world!

Ignore it and move on lol, they aren't worth worrying about. You are cheerful plenty of times - we all try to be where we can, that's what makes us such amazing, wonderful, bright, fantastic, humane, sparkly and cheerful people who get on with living despite a bucket load of crips thrown at us every single day.



Have a good day.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 11-06-2013, 09:56 AM #55
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Quote:
Originally Posted by SloRian View Post
OMG, I just posted my poem on another board I'm on (a literary discussion board) and I was told that idiots don't get sick because they're cheerful and too stupid to worry, and that's my problem. I just need to be cheerful, and things will be all right. I wonder if that also includes my son - if we're all cheerful about him, will he get his legs back?

Right.
Oh wow SloRian, what the hell? Tell the “idiot” (the mentally deficient person) that responded to you that you were posting ART. Literature is the art of written work and is completely subjective and if they are participating on a “literary” board, then they would know that… right? And by the way Mr/Ms idiot, mentally deficient people get sick and depressed ALL the time since they possess the human factor. If all it took to be healthy was to be happy and sing zippity do da, well damn, we’d have cured every single ailment already. This person is living in some fantasy that the world is just rainbows and butterflies. Unreal!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 11-06-2013, 01:31 PM #56
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Oh wow SloRian, what the hell? Tell the “idiot” (the mentally deficient person) that responded to you that you were posting ART. Literature is the art of written work and is completely subjective and if they are participating on a “literary” board, then they would know that… right? And by the way Mr/Ms idiot, mentally deficient people get sick and depressed ALL the time since they possess the human factor. If all it took to be healthy was to be happy and sing zippity do da, well damn, we’d have cured every single ailment already. This person is living in some fantasy that the world is just rainbows and butterflies. Unreal!
Wow Vrae! Don't hold back! Calm down there girl, lol. If only we could send you over there to give them a good talking to

Deep breaths now.....in....out.....in.....out..... There. All better.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 11-06-2013, 02:00 PM #57
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Quote:
Originally Posted by Brambledog View Post
Wow Vrae! Don't hold back! Calm down there girl, lol. If only we could send you over there to give them a good talking to

Deep breaths now.....in....out.....in.....out..... There. All better.

Bram.
lol .... don't mess with my CRPS cyber friends .. lol yes, all better now.
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 11-06-2013, 07:27 PM #58
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I know; one would think that on a literary board, they would have a bit of a clue. It's a discussion board on the works of JRR Tolkien (yes, I'm a Tolkien nerd ) but there's a writers' section where people share their original poems and short stories. It felt really good to put down those dark thoughts in words here, and I'm glad you guys understood, and I thought I would try it over there. However, I guess the RSD factor is more of an understanding thing than the literature factor. Plus, this one particular person isn't a regular and might not even know of my troubles. But still, that's NOT what you say to someone who is sick! and it CERTAINLY isn't true! At the least, I hope he has learned. A regular over there said that to her, it showed how much a mother does, even when it's hard, to show love for her daughter. That was certainly one of the themes of the poem.

Anyway, thank God for you all here! People that understand mean so much! I'll see if I can come up with a lighter poem next time. Mayibe about music - Bram, I've been playing my harp every day this week, and it's been really nice. It's hard to get up and creak over and set up, but once I'm there, it's really lovely. Are you able to play your cello with how bad your hands have been lately? I love the cello! I remember on a 9/11 memorial service, Yo-Yo Ma played a cello piece, and it was SO lovely ...
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Old 11-06-2013, 08:27 PM #59
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Hi SloRian, I got off of my Fear Thread and changed what I felt because I felt people were looking down on me and I was being too dark. So I ended up looking like a flip flopper who didn't know what they really felt. Well, I honestly felt the way I did when I was being dark on that thread. I don't enjoy feeling that way, but that's how I really feel. And if anyone takes offense to it, I'm sorry, but I have to be true to me.
I hope you don't lighten your poems or any of your other thoughts in the future if you just to please others. You should be true to yourself and post whatever you really feel dark or not. I understand your pain just like others who have this lousy disease. And trust me, you'll feel alot better if you post what you really feel rather than what you think others would prefer hearing. I learned that the hard way. From your friend RSD RENEE.
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Old 11-06-2013, 11:52 PM #60
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Aww, thanks Renee! I hope you don't feel too bad about that thread, though. I saw a bit of that thread and there seemed to be some misunderstandings, and it's a very sensitive subject. It really does help to talk about things, but sometimes this typed communication is really difficult!

Anyway, gentle ihugs and keep sharing
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