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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-07-2013, 12:59 AM | #61 | |||
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I couldn't agree more! Right on Renee!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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"Thanks for this!" says: | RSD ME (11-07-2013) |
11-07-2013, 03:55 AM | #62 | ||
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Renee - I know I've said this to you before lol, but stop apologising so much! That fear thread is a good and brave idea, and what each one of us thinks is as relevant as the others. We might not agree with each other, but we should be able to say so nicely and without causing hackles to raise. I think most of us manage to walk that line. Personally I found that discussion (most of it anyway ) really healing and helpful, and I was sad it stopped like it did. It certainly didn't make me feel bad or dislike you. And don't be so hard on yourself about giving in to that kind of emotional pressure, it's human to want to fit in and be liked. It was sad but understandable. As others have said - post what you feel, not what you want others to be happy with. As long as you stop short of being aggressive or taking offence where none was intended, then you have every right to post what you think and feel. I'd rather that than a board where we all spent our time agreeing with each other constantly and never hearing another side to a thought! This is the only place where I can speak freely about my CRPS and its effects and know that I will be understood by real people who actually experience the same things and feel the same things. That's amazing. You're all amazing. Right. Anybody fancy a delicious homemade chocolate and a cup of my best coffee? Have as good a day as you can my friends Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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11-07-2013, 04:00 AM | #63 | |||
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ummm, YES! pick me! pick me! lol
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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"Thanks for this!" says: | Brambledog (11-07-2013) |
11-07-2013, 11:47 AM | #64 | ||
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Thanks Bram. I do want to say how I feel, but don't want to influence anyone to feel that way too. I don't know if what I feel is right, and would feel worse if someone copied me if I was wrong. And I don't want to lose the friendship I've made with all of you. But you're right, if I'm not honest than what's the sense in sharing my thoughts on this forum. I try to be positive, but sometimes it's just so hard. Like when the pain gets real bad. In the beginning I had more deep cold aching pains from my rsd. Now after two years I'm getting that plus burning pains. And it's now spread to my hands wrist, legs and feet and stomach and ears. My hands and feet are burning real bad right now (two days ago my hands were cold and my feet were burning) and it's all scaring the crap out of me because the last two times I told my pm dr about it, he said to exercise and take my pain meds. There has to be more they can do than just offer that adivce. And if there isn't anything left to offer, then how do I cope with this pain? I see my root canal specialist tomorrow morning for my second visit to work on my tooth, then I am getting xrays on my feet, (I asked my gp to give me a script for this) and then off to my psychiatrist for my follow up with him. Maybe he can offer some good advice for me. Anyway thanks again for all of your understanding and kindness. I hope you all have a good day today. I'm going to soak my feet and hands now because the pain is getting really bad. I understand what they mean by rsd and feeling the fire. Bye for now.
Oh yeah, I would love some homemade chocolate and a cup of your delicious coffee too. Thanks girlfriend! |
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"Thanks for this!" says: | Brambledog (11-07-2013) |
11-10-2013, 12:54 AM | #65 | |||
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Yes, the cello definitely has that beautiful sad tone to it; just lovely. And also so soothing, as you say. It's really a lovely instrument. I really don't have much CD-wise for the cello except some Bach, IIRC; do you recommend anything? BTW, everyone, please call me Rian; that's usually what I go by online, but I think it was too short a name here or something so I had to add on stuff before it. SloRian is really kinda awkward; Rian is what I prefer ANNNNND it's shorter to type for those with sore fingers |
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11-10-2013, 07:56 AM | #66 | ||
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Hi Rian
Wow, I'm impressed that you compose and arrange - I know exactly what you mean about getting it down on paper, I've lost so many really nice little pieces that I've worked on and then forgotten. I've got an iPad (I'm on it now lol) but I've struggled to find a good notation app. Mind you, it doesn't help that I've for the original iPad, and it won't accept some of the newer (and better) apps. I'll try it again though now you've mentioned it!! Cello music....hmm...there's so much out there. I'm glad you've got the Bach, that's beautiful (it's been on a tv ad here in the uk). I love the Elgar Cello Concerto, particularly the Jacqueline du Pre recital if you can get it, she was such an amazing player. Another really lovely piece is The Swan by Saint-Saens - it's slow and beautiful, and I can just about play it (still working on it). I'd love to try the harp one day, have a wonderful time with it today! I also find that once I'm started with playing, even if I'm having a bad day, I start to really get into it and time just flies. One of the benefits Have a fab day, Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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11-11-2013, 03:31 AM | #67 | ||
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Feel the Pain By Michael Evans Nz
Life is like that one minute your here then your gone The only difference is your moving and i am not Going insane can you feel the pain Going insane cant understand the pain Going insane shaking like a leaf again Going insane no one understands the pain Then you take a killer and life feels alright for awhile when you cant feel the pain and you think your in control again Feel the pain as i lead my head forward again Feel the pain Feel the pain Feel the pain and carry on again Then you take some pain killers and you feel less pain but your incohearent and dopey again Feel the pain Feel the pain Feel the pain please make it go away again Run out of room part two in next thread |
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11-11-2013, 03:44 AM | #68 | ||
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Feel the pain part two by Michael Evans NZ
First it was in my elbow then in my forearm now its in my hand and its in my shoulder and i can feel i moving up my neck now its on the right side of my face and in my leg I am running out of space. Feel the pain Feel the pain Feel the pain in control again Just a thought as you feel the pain i may look alright from the outside but i am hurting like hell on the inside Feel the pain Feel the pain Feel the pain that no one else can see again Thanks for letting me join this site i hope you like my poem/song copyright Michael Evans. |
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11-11-2013, 07:27 AM | #69 | ||
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Hi
I was thinking as I read it that it felt more like a song! That's really good, definitely getting that feeling of the repetitive nature of the pain, and the last line sums it all up... So many thoughts in there that are right on the money. Keep writing! I don't know if it's possible to upload a soundfile lol, but I'd like to hear it sometime. Take care and I hope you have a good day today. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | RSD ME (11-11-2013) |
11-11-2013, 11:46 AM | #70 | ||
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"Comes The Dawn"
After a while you learn the subtle difference Between holding a hand and chaining a soul, And you learn that love doesn’t mean leaning And company doesn’t mean security, And you begin to learn that kisses aren’t contracts And presents aren’t promises, And you begin to accept your defeats With your head up and your eyes open With the grace of a woman, not the grief of a child, And you learn to build all your roads on today, Because tomorrow’s ground is too uncertain for plans, And futures have a way of falling down in mid-flight. After a while you learn That even sunshine burns if you get too much. So you plant your own garden and decorate your own soul, Instead of waiting for someone to bring you flowers. And you learn that you really can endure... That you really are strong, And you really do have worth. And you learn and learn... With every goodbye you learn. Author: Veronica A. Shoffstall |
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