Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-11-2013, 04:38 PM #71
freebird36 freebird36 is offline
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Quote:
Originally Posted by Brambledog View Post
Hi

I was thinking as I read it that it felt more like a song! That's really good, definitely getting that feeling of the repetitive nature of the pain, and the last line sums it all up... So many thoughts in there that are right on the money. Keep writing! I don't know if it's possible to upload a soundfile lol, but I'd like to hear it sometime.

Take care and I hope you have a good day today.

Bram.
Hi thanks for reading it I dont have a song file for it i play guitar not sing trust me if i did u would leave and i can never seem to find the right chords for it so
its just as it is. I really like you poems too and i think you should right a book
of poems. they would help alot of people i believe.

Rock on Peace out
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Old 11-13-2013, 02:25 AM #72
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Default Skin

Music... for me it's angry music and how I feel about this damn disease. Thanks for letting me share. If you care to hear it, here's a link. http://www.youtube.com/watch?v=znH7lx2d3kM

Beth Hart - Skin

She combs her hair & cleans her face
Closes the door & kneels to pray
It don't matter that she's alone
beast or dragons she's going home
If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within My skin

She found today
So hard to say
I sweat the sheets
too tired to play
& it don't matter
cause I'm still alive
Beast or Dragons
won't make me hide
make me hide, make me hide,

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within, blisters within My skin

Another way
I just cant find the words to say
Cold where I lay
it's cold where I lay
bones cracked to clay
a killer's in the way
and hot is my shame
Fire pulls my veins
For never is my name
Forever in my shame
holy come heal me
solely, delivery delivery

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within...

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within, blisters within my skin
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 11-13-2013, 05:07 AM #73
freebird36 freebird36 is offline
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Quote:
Originally Posted by Vrae View Post
Music... for me it's angry music and how I feel about this damn disease. Thanks for letting me share. If you care to hear it, here's a link. http://www.youtube.com/watch?v=znH7lx2d3kM

Beth Hart - Skin

She combs her hair & cleans her face
Closes the door & kneels to pray
It don't matter that she's alone
beast or dragons she's going home
If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within My skin


She found today
So hard to say
I sweat the sheets
too tired to play
& it don't matter
cause I'm still alive
Beast or Dragons
won't make me hide
make me hide, make me hide,

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within, blisters within My skin

Another way
I just cant find the words to say
Cold where I lay
it's cold where I lay
bones cracked to clay
a killer's in the way
and hot is my shame
Fire pulls my veins
For never is my name
Forever in my shame
holy come heal me
solely, delivery delivery

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within...

If I lay me down
bow my head unto the ground
Would you heal my skin
& these blisters within, blisters within my skin
First time i have Heard Beth Hart and i have to say i like her
really soulful blues/Rock I am a fan

Thanks Vrae

Rock on Peace out Mike NZ
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Old 11-13-2013, 09:45 AM #74
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Quote:
Originally Posted by freebird36 View Post
First time i have Heard Beth Hart and i have to say i like her
really soulful blues/Rock I am a fan

Thanks Vrae

Rock on Peace out Mike NZ
So glad that you enjoyed her. She is one of my favorite artists, and has been for about ten years now. Her record company has had her planted in Europe and I have yet to see her live. BUT! I am going to see a cat tonight who's collection of work is just as steller. His name is Marc Broussard and he's from the bayous of Louisiana. Check him out if you get a chance.

Have a great day you guys! x
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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freebird36 (11-13-2013)
Old 11-14-2013, 04:11 AM #75
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Quote:
Originally Posted by Vrae View Post
So glad that you enjoyed her. She is one of my favorite artists, and has been for about ten years now. Her record company has had her planted in Europe and I have yet to see her live. BUT! I am going to see a cat tonight who's collection of work is just as steller. His name is Marc Broussard and he's from the bayous of Louisiana. Check him out if you get a chance.

Have a great day you guys! x
That Marc Broussard rocks i like that Home song i just watched
on youtube he's a cool cat love his guitar riffs awesome Vrae.
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Old 11-18-2013, 02:03 PM #76
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Default Just Silly

This is not poetry - just silly thinking or REALLY DARK Humor!

I feel like RSD/CRPS is like some one has a"voodoo doll" of me that they torture. I mean the random types of aches & pains come out of nowhere like that.

Then for treatment? Let's throw the doll in different chemicals and see what happens?
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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Old 11-18-2013, 03:11 PM #77
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I'm giving that a dark LOL AzDi.....

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 11-18-2013, 06:46 PM #78
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ANGER, SADNESS PAIN

LOST INSIDE A STORM OF FIERY RAIN

MADDENED ACHING STRIPPED TO THE BONE

SCREAMING TO SEE

FAILING MY DREAMS

CRYING AND TORN FROM AN ICY FLAME

NO ONE CAN SEE

NOTHING LEFT TO DREAM

FLAILING FALLING LOST IN MY PAIN


By CRPS Songbird 2013
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Old 11-18-2013, 06:58 PM #79
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Songbird, that's powerful, raw stuff - very dark, but excellent writing. Wow.

Take care of yourself and I hope you sleep ok. Let's all hope for less pain tomorrow....

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.

Last edited by Brambledog; 11-19-2013 at 03:49 AM. Reason: Absolute muppetry ;-)
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Old 11-18-2013, 07:02 PM #80
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Quote:
Originally Posted by Brambledog View Post
AzDi that's powerful, raw stuff - very dark, but excellent writing. Wow.

Take care of yourself and I hope you sleep ok. Let's all hope for less pain tomorrow....

Bram.
I think you meant Songbird but thanks lol
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