Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-06-2013, 01:44 AM #1
Doofinshmirtz Doofinshmirtz is offline
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Join Date: Oct 2013
Posts: 2
10 yr Member
Doofinshmirtz Doofinshmirtz is offline
New Member
 
Join Date: Oct 2013
Posts: 2
10 yr Member
Wink Hi, new here

Hello all! I've been lurking here for a couple of weeks and decided I am finally ready to jump in.

I'm a 34 year old female with a sudden onset of crps on 5/1/13. I had no injury, no surgery, no nothing. Just sudden pain. Initially it started like I had hit my funny bone. My entire forearm and left hand was involved. The pins and needles in my arm was continuous and lasted about 3 weeks. The numbness in my pinky and ring finger is still there. They originally diagnosed me with ulnar neuropathy which made sense until mid May when my hand had no grip and was contracted. I had an emg test, mri's of the brain, cervical spine, and brachial plexus, multiple X-rays of my chest and left arm, and a stress test. Everything comes out perfectly normal. My primary doctor sent me to Cleveland Clinic where I got a diagnosis on 6/4/13.

You would think that with such a quick diagnosis things would be looking up, but they're not. It has already spread to my left shoulder, left leg (thigh all the way to my foot), and I've had chest cramping since early on. The medications I've been on were doing ok (minus a few I've had to drop due to allergic reactions) up until Thursday. I had been in so much pain that wasn't relieved I decided to call my neurologist Friday morning.... He never called back. I ran into my primary doc on Saturday and she said she'd send an rx for tramadol over to the pharmacy for me......again it never arrived at my pharmacy. The pharmacy tech suggested I go to med express and get an rx there. I did, but they gave me the "we don't just hand out pain pills" speech. I knew it was coming because I used to work at a hospital. I was humiliated, but I was in so much pain I had to do something. I got it filled right before my pharmacy closed at 9 and am feeling better nearly 6 hours later.

I've been going to physical therapy and doing what I've been told to do, so why is this moving so rapidly? Anyone else with a similar experience?
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