Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-03-2013, 01:30 AM #1
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Default Just Got Sick

I don't know if anyone's up, but I can't sleep. I just threw up and my stomach hurts again. It's very acidic. I guess it's time to call the dr. I can't seem to eat anything anymore without pain. I've been putting it off because I'm afraid I'll need gallstone surgery or something worse, and I don't want my rsd to spread. I'm so tired of this. I just want it to go away. Even if just for a day. I know people have it worse, but right now I just want the pain to go away.
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Old 10-03-2013, 01:37 AM #2
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I'm up, but I'm across the country in Phoenix; it's only 11:30 here. Which means it's 2:30 there a very dark and lonely hour that I know well

Well, here is a basket-full of sympathy and gentle hugs and prayers for you I'm so sorry it's a rough night

Our UK friends should be up soon - hopefully they'll join in. It's kinda fun to watch people wake up around the world on internet discussion boards. I remember my first year on a discussion board - it was a really friendly board discussing literature, and we always had birthday threads. It was so fun to look at my thread on my birthday and watch the various time zones chip in!

Well, see if a good movie is on perhaps ... so sorry it's a rough night
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Old 10-03-2013, 01:45 AM #3
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Thanks SloRian. I'm trying to hold out until later today to go to dr. I don't want to wake my husband to take me to ER. I don't think I'm going to be sick again, so I'm trying to wait it out. I hate ER's. I"ve been there before and they take forever with tests to find out what's wrong with you. I just would rather wait until later this morning. Hopefully, I won't get sick again.
I'll see if there's a good movie on. And thanks again for talking to me. Its is a very dark and lonely hour, that's for sure.
Thanks again for your kindness and for talking to me. I'm scared, but feel better knowing that your there and understand.
Hope you have a better night than me. Take care.
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Old 10-03-2013, 01:57 AM #4
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You too!

I'll be up a while longer, because I'm insanely behind on paperwork and I have things spread out and don't want to stop. I'll check in with you periodically I know a friendly voice means a lot on those rough nights.

Right now, I have "The Mummy Returns" running in the background as I'm wading through mountains of papers. They had a special edition with those little running comments showing at the bottom. Those are fun! Like "the train in this scene was last used in the move Lawrence of Arabia". I like the Mummy movies with Brendan Fraser (sp?) and Rachael Weitz (sp?). He's funny, and she's so pretty! And I have a bit of a crush on the Maji guy ... I've always liked dark men

See if it's on in your neck of the woods!

Can you get a teensy bit of milk down to help with the acid? or bread?
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Old 10-03-2013, 02:12 AM #5
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Hi Renee. I'm sorry you are having such an awful time. I hope that you are able to get to the doctor as soon as possible. In the meantime, if there is nothing good on TV you could look for some podcasts.

I hope things ease off a bit soon. Hang in there.

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Old 10-03-2013, 02:24 AM #6
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Yes! The UK is now up

OK, here's the latest factoid from the movie - there are over 80 pyramids in Egypt, and all of them are on the west bank of the Nile and face the setting sun.

(I hope you know I'm not trying to trivialize what you're going through - I'm just trying to distract you - ignore me if it isn't helping)
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Old 10-03-2013, 02:44 AM #7
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OK, last bits of trivia - I'm off to bed -

The cast was not allowed to use cell phones while filming the movie - too much distraction!

The scenes when they were going through the jungle (with the miniature mummies attacking them) were filmed not in Egypt, but in ... England!

Good night, and I hope you're feeling at least a little bit better
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Old 10-03-2013, 07:46 AM #8
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Default I hope you are sleeping

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Originally Posted by RSD RENEE View Post
I don't know if anyone's up, but I can't sleep. I just threw up and my stomach hurts again. It's very acidic. I guess it's time to call the dr. I can't seem to eat anything anymore without pain. I've been putting it off because I'm afraid I'll need gallstone surgery or something worse, and I don't want my rsd to spread. I'm so tired of this. I just want it to go away. Even if just for a day. I know people have it worse, but right now I just want the pain to go away.
Oh Renee,

I am so sorry you are having such a rough night! I am worried about your stomach .. I read your description of the pain on another thread and wonder if there is more going on than gallstones. Have you discussed your stomach issues and medication list (plus OTC's) with your doctors? Do you have an internal medicine doctor? If you don't I would highly suggest this.. make this one your primary and co-ordinate that all medical treatment etc., is copied to him/her. I hope you can get in to see someone today!!!!

In the mean time:

Do you eat yogurt? That is also something I would encourage - look for the kind with 'live cultures' and add that along with a banana or blueberries everyday for a few weeks [forever is better]. Lol.. not all together but throughout the day. Have you by any chance tried the Four F's diet? I know it seems to have many restrictions but honestly (at least for me) it has been a godsend. I have had difficulties with my stomach and bowels since having radiation therapy.. I vomited nearly everyday and had horrible stomach pain after every meal. Now, I know our symptoms are not the same but since CRPS can affect the GI tract and you have been having troubles for a while it might be worth trying. I've been on the diet now for a few months and other than the occasional upchuck from medications all of the other symptoms have all but disappeared.

Another thing to think about: the less movement our bodies get the harder it is for our body to digest things. Everything slows down.. our metabolism, our brain function, the ability to heal, our colon etc., it sort of goes into a 'power saving mode' which is why it is so important to do your best to stay moving and do this throughout the day. Do you have a recumbent bike? I would recommend getting one. Park it in front of a TV/PC so you can watch TV or even Netflix (this promotes more use). It is low impact and you don't need your arms/hands to use it and it can be used with out the foot straps so as not to put pressure there either. I have one in my living room and I use it several times a day and it helps for many reason but the one big reason.. it gets the colon moving which is challenging due to medications. Second reason.. helps combat medication induced weight gain I could go on.. truthfully I cannot understate how import it is to get that heart/blood going especially with CRPS/RSD or any other movement disorders.

Sorry for babbling.. I'm just really concerned for you.

iHug.. many of them for you this morning,
Tess
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Old 10-03-2013, 08:06 AM #9
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Oh darlin wish I was there to help you. Go to the dr. Tell them EVERYTHING. Meds, how you are feeling, stomach issues everything. If you need to go to the ER go. Don't play the brave card. Do what you need to to stay as healthy as you can.
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Old 10-03-2013, 08:20 AM #10
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Hi Renee,

I'm so sorry you're having all these stomach problems, I had them myself a while ago (not as badly, I was lucky), and I know how distressing it is. If it carries on for more than 2 days, then definitely see your doc and find out what's going on. You need looking after My problems (vomiting, pain, temp, pain, vomiting) turned out to be the Gabapentin I was on - it happened twice over about 2 months and absolutely wrecked me for a while. When I stopped taking it I improved quickly. Hopefully if you have to see them the docs will find out what it is and sort it fast for you.

Bio-live yogurts are a great idea if you can take them. Relaxation techniques are good for stomach stresses too, because stress and your gut are so tightly linked... Conversely of course it's hard to relax when you're feeling so bad and in pain. All you can do is try.

Take care of yourself, and I hope you feel better very soon. It might be a stomach bug and resolve quickly...fingers crossed

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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