SYMPTOM MIGRATION: My Story

05-22-2007, 06:34 AM

Hi Lillyblossom,
Yes, there is a lot of negative stuff on the net regarding vitamin C, but there's more positive stuff

Seems like the topic has as as many people rooting for it as against it, lol!

But Pauling's research and reputation are definitely making a comeback (he was in the science dog-house for a while, as the excellent article posted by IHH explains) as more specific research is being done regarding antioxidants in general.

Pauling won the Nobel prize twice, he should be worth taking seriously... and hey, Einstein's dead too, but that doesn't negate the work he did. That's the point, really, that the research he did all those years ago, that was refuted by others later, is now being completely re-evaluated.
Anyway, like you say, each to his own.

Hi Jeisea! Welcome!
I'm in total agreement with you, specially about "eating smart" - I figure since I have to eat, might as well get food that'll do something positive. Many thanks for the info and yes, please give us the blog link, I'd be really interested in reading it, thank you!

all the best

InHisHands · 05-22-2007, 02:00 PM

Thanks, Artist for your posts in this thread!

Lillyblossom, I certainly wasn't trying to start a problem, only point out that that is a fallacy about taking "too much vitamin c". I just thought I would point out the wonderful research done by Linus Pauling. Too much vitamin c is a joke. It is water soluble, and the worst thing that can happen (as far as I know) is you'll keep running to the bathroom!

Eating healthy is a great way to aid your body, as Artist and Jeisea (welcome, btw!) pointed out. But sometimes, with illnesses such as this, your body also needs supplements.

I am a big fan of the least medication possible that helps, healthy eating and supplements.

Speaking of eating well, Dr Hooshmand has a diet called the "Four F's" which is supposed to help RSD patients. I haven't done it totally yet, but I am working towards eating that way. I'll let you know if it helps.

Have a blessed day!

jennyk38 · 05-27-2007, 08:41 PM

Quote:

Originally Posted by Vicc

About ten years ago I began taking the antioxidant grape seed extract (GSE) in the hope that it would prevent, or at least delay the onset of symptom migration, and for ten years it appears to have done exactly what I hoped: I have not had any new RSD symptoms anywhere in my body.

Since some people never experience symptom migration this could just be my good luck, and if this is all I have to show that GSE actually works I might as well not say anything. There is more, however, and I hope that after reading the rest of this post you will decided its worth $10.00 a month to protect yourself from this awful complication.

There is scientific support for antioxidant protection from symptom migration, but that support is based on RSD as a disorder called ischemia-reperfusion injury (IRI), and NOT the result of nerve damage. During my nearly ten years at BrainTalk I wrote thousands of words explaining that nerves don’t do what RSD “experts” tell us they are doing. They really can’t.

After explaining why this can’t result from nerve damage I wrote about IRI and how it also begins with a physical trauma. I wrote about how IRI explains every sign and symptom of RSD, explaining exactly how it produces all three types of RSD pain; lower skin temperature; patchy osteoporosis; diminished hair and nail growth, and how it explains the one RSD sign the “experts” never talk about: Cyanosis.

I described the IRI process in detail, including the role of oxidants called oxygen free radicals (OFRs) in this disease. I said that physicians apply the topical antioxidant vitamin E to surgical wounds in order to prevent IRI from developing, and this is what led me to begin taking the oral antioxidant GSE.

In other words, I offered a scientifically sound rationale for delaying symptom migration that would only be valid if this really is an IRI. But I can’t prove RSD is IRI, so why should you pay any attention to this post?

Because of the story I’m about to tell you, the story of my experiences while taking, and then not taking GSE. I think its a compelling story and hope you agree.

As I said, I began taking GSE about ten years ago (a few months after the RSD spread from my left to my right foot), and have not experienced any new symptom migration; I have however, come close a couple times.

After taking 100mg of GSE every day for about two years, I noticed that about once a month the inside of my left wrist would turn bright pink and burn like a sunburn. I began to apply the topical antioxidant DMSO to the area three times a day, and after about three days the inflammation would subside.

I kept up this routine for more than a year and then got the bright idea that since the DMSO controlled the inflammation I could just use it a couple days a month and not have to spend any money on GSE. I stopped taking it and waited to see what would happen next.

I didn’t have to wait long: In just a few days both arms and both legs were bright pink and burned like a moderate sunburn. I realized the GSE had been doing a lot more than just protecting my wrist, and was scared to death that my now red, warm skin was about to turn into the cool skin and cyanosis of full-body RSD.

I began taking GSE again: 300mg daily now. I also smeared DMSO over my arms and legs five times a day. It took only two days for the inflammation to subside; I had been spared from a major disaster. If I had had any doubt that the GSE was worth the money, it was gone forever.

There is absolutely no explanation for the sudden onset of inflammation in both arms and both legs (exactly what happens in first stage RSD), except that the GSE had been preventing it. I had never had any such inflammation before RSD; have you?

RSD “experts” might say that the inflammation was a sort of reverse placebo effect: that I believed the GSE was helping and when I stopped taking it my mind caused the inflammation to begin. Maybe, but I’ll keep taking GSE anyway. Anyway, a “reverse placebo effect” can’t explain what happened next:

About five years ago I went into a very long emotional crisis; so severe that I decided my only answer was suicide. Not just suicide, however; I wanted to die in a very specific place, the place where I had proved to myself that I had the courage to die. Long story short: I could only drive about 150 miles a day and this place is more than 1800 miles away. I had to get the money to make the trip and plan it very carefully. All of this took time.

During this time I guess I forgot to take my GSE regularly. One morning I woke up and both arms and both legs were bright pink and burned. I had to drive 50 miles to buy DMSO, and of course began popping GSE like crazy. After a couple of days the inflammation subsided again.

I also realized that ending my life wasn’t my only option after all. I could have looked at the inflammation and decided I wasn’t gonna make it to Chiapas and just tucked a .22 under my chin, but instead I drove 50 miles to buy DMSO. That’s the sign of a man who wants to live.

Like I said, “reverse placebo effect” doesn’t fit this last scenario: I didn’t know I had forgotten to take the GSE, so its hard to imagine my mind tricking my body into becoming inflamed again.

That’s my story. If BT hadn’t crashed I could post all the stuff I wrote there, but nobody really read it there anyway. The bottom line is that when someone tells you a story like the one you just read, you need to give it some very serious thought.

I can’t guarantee that taking GSE will delay symptom migration. I can tell you that only one person who reported taking GSE later reported suffering symptom migration, while lots of people who don’t take it post about new symptoms all the time. I guess we can’t know for sure unless everyone here believes me and begins taking GSE. I know I’d like to know for sure.

Finally, as I wrote the line “...lots of people who don’t take it post about new symptoms all the time”, I realized that I have let a lot of people down. A lot of “newbies” never had a chance to read my story.

I guess everyone will have to get used to seeing this thread “bumped” a lot; like once a month…Vic

hey vic, i'm a newbie and i was glad to see this post. Last night i was actually reading through a bunch of old posts and some a few interesting things regarding you and your point of view. i was quite intriqued but unable to determine just exactly what was being discussed. I will definitely be buying gse. I also take magnesium, a b complex with methyl-b(very good from what i hear) evening primrose, dl phenyalenaline, and the usual a,c,e. what is dmso cream? is that a script or o.t.c.? what other anti-oxidants do you take. i would really like to pick your brain, so to speak. thanks for the tip! jen

Linmarie · 05-29-2007, 12:14 AM

Vic,
I was just re-reading this post & remembered that I read what you wrote on BT. That is why I started taking GSE. I know I printed out some of the things that you wrote. I've moved so don't know if I still have it, but if I find it, I'll let you know.
I've upped my GSE from 100 or 200 mg per day to 300. Can't hurt, can it?
Linmarie

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