[AC33]

Hey guys,

My sister has RSD and has tried Barrow Neurological Institute for about a year and is still having major problems with her RSD in her foot. We have heard there are some clinics that treat RSD intensively for about a month and that it might help her. Have you guys heard about these places/know if they're as good as they sound/worth traveling to?

I may have found Stanford University Hospital as a possible place for RSD treatment, does anyone know about it?

Does anyone have any places they recommend/have used before?

Thanks in advance,

AC33

[RSD ME]

Hi and welcome.
I think there is a list of universities that work on rsd treatments on the rsdhope.org link.
If I remember correctly I think my gp dr said that Columbia University in New York does research too. I am looking in to going there if I can get a ride from my husband.
My rheumatologist told me that there are no doctors that specialize in rsd. Only universities are investigating it. I think it's sad and scary. Well, good luck and hope you feel better soon.

[Allanira]

I just saw an article for one in Seattle Washington that does intense therapy. Rsd affects us all differently though. Some stay in one place others spread. Mine stayed in my knee and lower leg till I bonked my pinky toe a couple times really good. Now I can tell its going to my foot. That article I saw I will try to get it off my military crps Facebook page and post it here. Pretty info on how they do things. If I cant I will get the name of the place for you to look up. I was just recently diagnosed mthough so I am still learning new things about this disease.

[madjock72]

I know you have to pay for your treatments but you do have some of the best places to treat this condition. I think we have one in the UK but that only deals in kids treatment and only for those that have had a quick diagnosis. We are so far behind in dealing with this condition that we only had a question raised about it last year i think. Our own consensus put this condition with around 12,000 people in the UK with it, so that makes it a pretty rare condition so little funding or research will be done.

[rachel's daugther]

I believe they just opened a new RSD clinic in New York, please google it. Good Luck