Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-17-2013, 10:56 PM #1
taylor6 taylor6 is offline
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Join Date: Oct 2013
Posts: 3
10 yr Member
taylor6 taylor6 is offline
New Member
 
Join Date: Oct 2013
Posts: 3
10 yr Member
Smile young & new to CRPS

Since this is my first post on here, I guess il introduce myself.. My names Taylor and i'm 21. My journey with crps started alittle over a year ago, with no injury whatsoever, other then having the flu and feeling achy in my foream.. after a couple tests, crps was a possible diagnosis. Started therapy, in my small town pt, which helped but not much.

Then started Cosmetology school. was about 5 months in and one day had a huge flare and intense pain. went on a medical leave, and saw a hand and arm specialist, did more intense pt, more dr tests rheumatologist, neurologist, and a couple more drs. All with the same answer.. it s crps.

Now ive been out of school 7 months. Still no change in pain. therapy was discontinued, due to not making progress anymore, and just starting with a pain management DR, putting me on Lyrica and Lidocaine patches, if these don't help supposed to be getting my first nerve block done. THis new dr basically told me I might need to think of other career options since the crps is in my right arm. Im literally at a loss. im 21.. this is not what I should be feeling like.

JUst moved into my first apartment with my boyfriend, and with the pain im in I hate going out or doing anything anymore really. Most of the time I lay around at home, im right handed & with this in that hand I dread using it somedays.
My moms someone who always has compassion for me, but somedays I just want to scream you don't know what its like... when she says I need to keep using my hand so it doesn't lock up. anyone else ever feel like that?

that's where im at right now. that's my story.
Im not sure what im looking to get out of this group, maybe just someone who understands what im going through.
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