Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-29-2013, 06:02 AM #1
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default So frustrated...

I am struggling and having a really hard time right now. As many of you already know, I have RSD/CRPS throughout most of my body. Every part of me that is affected is flared up so much. I don't know what is going on. This is really bringing me down emotionally too It doesn't help that I haven't been able to sleep well lately, had a hard time falling asleep last night and then was up at 3 am...ugh!

On top of this, I am having bladder issues. Diagnosed recently with interstitial cystitis and pelvic floor dysfunction...this doesn't help things at all. None of the IC treatments so far have helped. I am scheduled to have a cystoscopy in a few weeks...he will do a hydro distention and take some biopsies. We were putting this off because of my RSD. Thank goodness this dr is very familiar with RSD. I have to do PT for the PFD, but she never heard of RSD or CRPS...I am educating her before we start

Thanks for "listening", I just needed to get this out...

Nanc
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