Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-14-2007, 07:54 PM #1
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Default Swollen Face?

Heya,

I have never really experienced this before to a great degree - although my face has had pain, some colour change and alloydinia it has never done this. It has swelled and had patches of freezing cold and burning hot all the way around it. Any ideas how it can go down? Really hurts!

Thanks

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Old 05-14-2007, 08:16 PM #2
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Hey girly!!

I dealt with this right after the RSD spread to my face... my cheeks were swollen and trying to eat was hard (that and the locked jaw!), but didn't know what to do. After a week it settled down for me. Sorry I can't offer you many tips, but I am sending lots of love your way!! ((hugs))

Love you!
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Old 05-14-2007, 08:31 PM #3
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Thanks babe!!

I have had it before but this seems different somehow... it's more... I never had the greyness, tight skin and stuff. but I will keep my fingers crossed it goes away because I don't like looking an idiot!

Did you get my last email?

Love ya babes and thanks!!!

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Old 05-14-2007, 08:34 PM #4
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awwwwwwww.. Frogga... (((BIG HUGS))) I am so very sorry your in such pain!!! did you try some ice?? Motrin?? Love ya!! Desi
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Old 05-14-2007, 08:41 PM #5
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Quote:
Originally Posted by Desi View Post
awwwwwwww.. Frogga... (((BIG HUGS))) I am so very sorry your in such pain!!! did you try some ice?? Motrin?? Love ya!! Desi
Desi, ICE is a HUGE NO-NO for RSD!!!! (just wanted to let you know about this!)

Later, when I feel a little bit better I can find you lots of papers on that (if you would like). Sorry I can't now- ROTTEN night!
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Old 05-14-2007, 09:33 PM #6
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Oh my goodness Vanessa! thanks for saying that ice is no good for us RSD sufferer's! My surgeon who did my Carpal tunnal surgery told me to use ice with the swelling!! no wonder, I felt worse!! yes, please send me some info on this when you can. I am sorry, Vanessa, that your having a rotten night!! Hope tomorrow finds you feeling much, much better Lady!!
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Old 05-14-2007, 09:54 PM #7
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Ouch. This sounds new and completely wretched. Have you tried a dab of bright pink lip gloss to distract the casual bystander? (sorry, am very useless tonight). Arnica gel? gentle hug.
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Old 05-18-2007, 07:42 AM #8
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How is your face now?

Last night my left cheek swelled up, and I noticed there was more pain than usual in my cheek, but didn't think anything of it (I thought "pain and more pain", but didn't think it'd look strange to anyone else). Then I was talking to my mom, and she asked me if my cheek was swollen because it looked all puffy... I looked in the mirror and sure enough! My left cheek kept swelling more and more through the night. It has calmed down some since, but I felt like I had a golf ball in one cheek... eek!

Love ya!
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Old 05-18-2007, 12:25 PM #9
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Hi Frogga,

I have this SX as well. Hugs, Roz
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