Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-03-2022, 06:54 AM #1
Suze54 Suze54 is offline
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Suze54 Suze54 is offline
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I have CRPS in right foot, but left foot is starting to mirror also. This resulted from a surgery where the specialist didn't use a nerve block.

Always in a bad temper from pain, and can't walk normally; in fact, loathe to walk at all.

Pain doctor was of no help after many appts spanning half a year; his suggestion was canibus spray and pregabalin.

Is there anything that can be done since my future as a cripple with burning feet is unacceptable.
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Old 10-08-2022, 05:19 PM #2
Imahotep Imahotep is offline
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Quote:
Originally Posted by Suze54 View Post
I have CRPS in right foot, but left foot is starting to mirror also. This resulted from a surgery where the specialist didn't use a nerve block.

Always in a bad temper from pain, and can't walk normally; in fact, loathe to walk at all.

Pain doctor was of no help after many appts spanning half a year; his suggestion was canibus spray and pregabalin.

Is there anything that can be done since my future as a cripple with burning feet is unacceptable.
Most of us have to find what works for us.

Generally this means you have to find a way to not think about the pain. This sounds absurd since the pain can be so severe and so "in your face" but this is usually going to be one of the most important means of dealing with it. Gabapentin might help take the edge off. you need to limit stress since there's usually a close connection. Things like diet can be important but not for me.

Check some of the old threads. I found grape seed extract helped as does Gingko biloba. Staying warm helps a lot. Stay active and get as much exercise as you can tolerate.

there are dozens of thins that have helped me and many more that have helped others. If I can keep my stress levels low I barely experience RSD at all any longer. My hand is still weak and sensitive but it's getting stronger now.

Good luck. Most remissions happen in the first two years so this is when you need to really address the problem. But even after this there is partial remission and learning to live with it.
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