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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-11-2013, 05:40 PM
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Has anyone ever gone into remission from their rsd. And if so how did you get it to do that and how long did it last. Thanks again.
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11-11-2013, 06:55 PM
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Hi Renee! I was first diagnosed with RSD in the right side of my face. I was treated very aggressively with meds and stellate ganglion blocks. I was in remission for many years, maybe 13. I had flares during that time, but they were minor and I could control them with meds.
I came completely out of remission in 2005 and it has been pretty much hell ever since as I have it all over now 
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11-11-2013, 07:08 PM
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Do you know what caused you to come out of remission. I'm sorry that happened. My pm dr said he knew someone who went into remission from rsd in one hand and that a few year later they got an infection in the other hand and the rsd came back.
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11-11-2013, 07:11 PM
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I have no idea what brought me out of remission, but I remember it was in November that year and the ice cold wind hurt my face like crazy. A dr at the time told me I had trigeminal neuralgia too.
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11-11-2013, 07:14 PM
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I'm sorry to hear about that. I've never gone into remission. I keep hoping someday I will but no luck so far. You'll be in my thoughts when you have your procedure done. I hope it helps you to feel better.
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| "Thanks for this!" says: | AZ-Di (11-16-2013) |
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11-11-2013, 07:43 PM
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Thanks Renee, I appreciate your good thoughts!
I forget...how long have you had RSD? |
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| "Thanks for this!" says: | RSD ME (11-11-2013) |
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11-15-2013, 10:16 AM
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Quote:
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| "Thanks for this!" says: | Nanc (11-15-2013) |
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11-15-2013, 10:22 AM
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Quote:
 Rsd is something else.That was a great question.Its so painful to hear you better,than surprise Its back..Best of wishes to everyone..
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| "Thanks for this!" says: | RSD ME (11-15-2013) |
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11-15-2013, 06:24 PM
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Member
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Quote:
RSD is just the old name for Complex Regional Pain syndrome. They are the same condition, just fyi. It has been through a few name changes. They changed it to CRPS because it was a more fitting description medically. Because is is not always the Sympathetic system that is affected.
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| "Thanks for this!" says: | Brambledog (11-15-2013), RSD ME (11-15-2013) |
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11-21-2013, 12:04 AM
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I got it in '98 and went into a partial remission. By mid-'03 I was able to cope and got off all the medication. It was about a 60% remission but then I was injured and it came back worse than ever.
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| "Thanks for this!" says: | RSD ME (11-21-2013) |
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