Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-13-2013, 04:40 PM #11
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Default hope you are better soon..

I feel your pain.Its terrible to get sick ontop of rsd..Sounds like you have good family support..Get better.prayers sent your way..
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Old 11-13-2013, 07:11 PM #12
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Ugh! the flu?! So sorry, and hope you feel better soon!

Lots of hot tea and honey is my Rx and an EXTRA-gentle iHug for you because of the aches
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Old 11-13-2013, 08:08 PM #13
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I am surprised the doc recommended not getting the vaccination. I live in New York, and as of this year if medical care professionals don't get the shot, they have to wear masks while caring for patients.

Personally, I think the fact that some people get the flu after getting the shot is not really proof that the shots don't work. It is true that not all strains are covered, but clinical trials have shown that the risk is lower for people who get the shot. Clinical trials are more reliable evidence than anecdotal observation. Doctors are supposed to be moving towards "evidenced based medicine."

That said, whether or not a particular individual get the vaccination depends on their own health status. Don't forget the clinical trials probably only include healthy people.
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Old 11-13-2013, 11:00 PM #14
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bless you...feel better soon!!
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Old 11-14-2013, 01:38 AM #15
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Hi Bram, I hope you feel better today. I'm so sorry you have the flu on top of your rsd and hope it goes away soon. I wish I could help you, but I'm too far away. I am sending you warm hearted thoughts though. Hope you can get some rest today and can get over the flu soon.
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Old 11-14-2013, 03:33 AM #16
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Quote:
Originally Posted by Ccm47 View Post
I am surprised the doc recommended not getting the vaccination. I live in New York, and as of this year if medical care professionals don't get the shot, they have to wear masks while caring for patients.

Personally, I think the fact that some people get the flu after getting the shot is not really proof that the shots don't work. It is true that not all strains are covered, but clinical trials have shown that the risk is lower for people who get the shot. Clinical trials are more reliable evidence than anecdotal observation. Doctors are supposed to be moving towards "evidenced based medicine."

That said, whether or not a particular individual get the vaccination depends on their own health status. Don't forget the clinical trials probably only include healthy people.
She didn't say NOT to get the shot or that it doesn't work, just that she doesn't get it, and exactly because it can only cover the strain they THINK is going to be prevalent that year, and of course often it's more than one. She said she's seen colleagues get the shot, but then come down with a different strain of it anyway. Like a big game of roulette... In the end, as with all this stuff, it's up to me whether to go for it or not. I have a few weeks to wait now anyway, so I'll keep reading
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Old 11-14-2013, 03:42 AM #17
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Thanks so so so much for all these lovely thoughts, they really help

Was a little better yesterday, not so sleepy, and out of bed for a few hours. Even washed my hair (hate dirty hair). This morning though, i hava a major headache, my throat is very tight and full of crap, and my nose is starting to get involved. I hate these bugs so much - I mean who invented this as an idea?!

My family have been so great the last two days, but inevitably it is starting to wear off lol, they've all left the house and forgotten to feed the animals, so I have the perfective incentive to haul my sickly carcass out of bed and give them their breakfast...very, very carefully... I'm not looking forward to those stairs though, they seem much longer at the moment! Then I might retire to my bed again where it's warm. Mmm.

Thank you. You guys are my rock.

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 11-14-2013, 01:39 PM #18
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Oh that's terrible Bram! I would really try to get one of your drs to get you something. I know for us RSDrs it seems everything just lingers longer because our system is already at war with the pain.


Quote:
Originally Posted by Brambledog View Post
Thanks so so so much for all these lovely thoughts, they really help

Was a little better yesterday, not so sleepy, and out of bed for a few hours. Even washed my hair (hate dirty hair). This morning though, i hava a major headache, my throat is very tight and full of crap, and my nose is starting to get involved. I hate these bugs so much - I mean who invented this as an idea?!

My family have been so great the last two days, but inevitably it is starting to wear off lol, they've all left the house and forgotten to feed the animals, so I have the perfective incentive to haul my sickly carcass out of bed and give them their breakfast...very, very carefully... I'm not looking forward to those stairs though, they seem much longer at the moment! Then I might retire to my bed again where it's warm. Mmm.

Thank you. You guys are my rock.

Bram
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Old 11-14-2013, 01:43 PM #19
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Here in the US its required for most medical professionals to get there vaccine. Bram is in the UK so might be different rules. In my area if you work in a hospital you HAVE to get your vaccine or your fired, there is no other option and then you have to keep special stickers on your ID card.


Quote:
Originally Posted by Ccm47 View Post
I am surprised the doc recommended not getting the vaccination. I live in New York, and as of this year if medical care professionals don't get the shot, they have to wear masks while caring for patients.

Personally, I think the fact that some people get the flu after getting the shot is not really proof that the shots don't work. It is true that not all strains are covered, but clinical trials have shown that the risk is lower for people who get the shot. Clinical trials are more reliable evidence than anecdotal observation. Doctors are supposed to be moving towards "evidenced based medicine."

That said, whether or not a particular individual get the vaccination depends on their own health status. Don't forget the clinical trials probably only include healthy people.
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Old 11-15-2013, 11:51 AM #20
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I usually end up with a head cold...which is exactly what I have now. My DD came home from school yesterday with a fever and stomach issues, but my stuff is all in my head. I'm back at work today but only because I know I can leave if I need to.

I've read a few of you mention your CRPS getting worse with illness. Oh man did I deal with that last nigh. My toe felt like somebody was standing on it and digging in. Then I got a big line across my face that was painful. My lips and nose have been tingling and numb the last couple days. I couldn't sleep because I couldn't breathe, and then I'd take sudafed and it would keep me up.
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