[RSD ME]

I was just wondering what pain meds your drs prescribe for your rsd on a daily basis to help manage your pain. I just want to compare notes if you don't mind. I would really appreciate it. I'm just wondering if I should try a different route in controlling my rsd pain, if there is one. I take advil, percocet, neurontin, zoloft, xanax (and voltaren gel as needed). Again any input would be greatly appreciated. Thanks.

[alaska49]

every person is different when it comes to meds but this is my meds.

morphine liquid 2ml every 3hrs
morphine oral 30mg every 3hrs
fentanyle patch 200mcg every 72hrs
lidocain patch 1500mcg ever 12 hours
ketamine nassal spray 100mg every 4hrs
ketamine lozanges 30mg every 4 hours
valium 10mg every 6hrs
keppra 1500mg 3x a day
mexilitine 250mg 3x a day
meclizine 25mg when needed for vertigo

and I have more meds but they are for other medical conditions I have

[zookester]

Originally Posted by alaska49

every person is different when it comes to meds but this is my meds.

morphine liquid 2ml every 3hrs
morphine oral 30mg every 3hrs
fentanyle patch 200mcg every 72hrs
lidocain patch 1500mcg ever 12 hours
ketamine nassal spray 100mg every 4hrs
ketamine lozanges 30mg every 4 hours
valium 10mg every 6hrs
keppra 1500mg 3x a day
mexilitine 250mg 3x a day
meclizine 25mg when needed for vertigo

and I have more meds but they are for other medical conditions I have

Hey Mike (oops sorry if your name isn't Mike don't know where I got that).. I was wondering how effective mexilitine is for you? My doctor just prescribed that while we are waiting approval for the lidocain infusion, I understand the two do the same thing? Does it help you? If so in what ways?

[RSD ME]

Hi Alaska. I'm so sorry you have to take all those meds. I see in your profiles you have full body and internal rsd. I'm so sorry about that too. I thought maybe I was taking too many meds, but can see that you take alot for your pain too. They are different than what I take, but still strong. I had to increase my meds for the first year and a half but have been stable on them since then. (Which has been for about a year knock on wood.) Anyway, thanks for your input and I hope you go into remission soon someday and feel better. My thoughts and prayers are with you. From your friend, Renee.

[RSD ME]

Originally Posted by RSD RENEE

Hi Alaska. I'm so sorry you have to take all those meds. I see in your profiles you have full body and internal rsd. I'm so sorry about that too. I thought maybe I was taking too many meds, but can see that you take alot for your pain too. They are different than what I take, but still strong. I had to increase my meds for the first year and a half but have been stable on them since then. (Which has been for about a year knock on wood.) Anyway, thanks for your input and I hope you go into remission soon someday and feel better. My thoughts and prayers are with you. From your friend, Renee.

Sorry I called you Alaska too. Thanks for clearing up your name Samantha. Take care.

[alaska49]

Originally Posted by zookester

Hey Mike (oops sorry if your name isn't Mike don't know where I got that).. I was wondering how effective mexilitine is for you? My doctor just prescribed that while we are waiting approval for the lidocain infusion, I understand the two do the same thing? Does it help you? If so in what ways?

my name is samantha but thats ok mexilitine helps with my nerves in trying to keep them calm and its supposed to help with repairing i have been on it for 4 years and I believe it helps me alot.

[zookester]

Originally Posted by alaska49

my name is samantha but thats ok mexilitine helps with my nerves in trying to keep them calm and its supposed to help with repairing i have been on it for 4 years and I believe it helps me alot.

Samantha (love that name!!) and I too am sorry you have full body!! I see from your profile that you are a pastry chef . are you able to enjoy doing some baking? I'm no pastry chef but I sure enjoy eating it!

Thanks for the info on Mexilitine - that is also the goal for me to calm the nerves where the injuries are which is right in my groin crease since even breathing makes these nerves fire.. They also say that lidocain and Mexilitine help with cold induced electrical shocks & sensitivity; has that been true for you? Assuming you have those same symptoms when cold air hits your body or your limb gets cold from the lack of blood flow? Sorry if I am being to nosy, its just that my doctor mentioned very few are prescribed this particular medication so I was happy to see you were on it so you could give me your personal feedback.

Thank you so much for sharing!
Tessa

[zookester]

Lidocaine patches 3-4 12 hours on then 12 off per day
Voltaren Gel use 3x per day during off hours of the patch
Medicated Compound Cream 2-3 times per day on each affected limb

Gabapentin 900mg. 3x per day
Amitryptalene 50mg per day at bedtime (working up to 75mg)
Celebrex 200 mg daily
Butrans patch 5-10mcl hour (change every 7 days)
Oxycodone 5mcl for breakthrough pain
Mexilitine (haven't filled this one yet)

I also have my spinal cord stimulator running 24/7 which helps a ton.

I take Vitamin D3, Calcium, Vitamin C, B6 & B12 daily. I also follow the Four F's diet almost to a 'T' except the coffee part which has helped me stomach issues immensely!

Oh and I've been given the go ahead if I want to use MMJ but haven't yet done that yet either.

[alaska49]

Originally Posted by zookester

Samantha (love that name!!) and I too am sorry you have full body!! I see from your profile that you are a pastry chef . are you able to enjoy doing some baking? I'm no pastry chef but I sure enjoy eating it!

Thanks for the info on Mexilitine - that is also the goal for me to calm the nerves where the injuries are which is right in my groin crease since even breathing makes these nerves fire.. They also say that lidocain and Mexilitine help with cold induced electrical shocks & sensitivity; has that been true for you? Assuming you have those same symptoms when cold air hits your body or your limb gets cold from the lack of blood flow? Sorry if I am being to nosy, its just that my doctor mentioned very few are prescribed this particular medication so I was happy to see you were on it so you could give me your personal feedback.

Thank you so much for sharing!
Tessa

ya thats true mexilitine actually has lidocain in the ingredients thats one main reason I am given it.

[freebird36]

Originally Posted by zookester

Hey Mike (oops sorry if your name isn't Mike don't know where I got that).. I was wondering how effective mexilitine is for you? My doctor just prescribed that while we are waiting approval for the lidocain infusion, I understand the two do the same thing? Does it help you? If so in what ways?

No i Dont take that never heard of it i just wrote my list sorry i cant be of any help.