NeuroTalk Support Groups - Decision made on my SCS...

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Decision made on my SCS... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/197540-decision-scs.html)

moosey2me

11-24-2013 12:27 PM

Good luck

Quote:

Originally Posted by Nanc (Post 1031291)

Hi guys! So I saw a new neurosurgeon today and we have all decided that the best thing is to remove my two spinal cord stimulators. Surgery is not scheduled yet, but I am shooting for sometime after Christmas.

I am having a bladder procedure this Monday...so much going on...:(

We all hear will be praying for you.We all hope you receive good care and a good bennifit from it..God Bless

Nanc	11-24-2013 06:48 PM

Thanks for all the good thoughts and well wishes, they mean a lot! You guys are awesome!
Nanc
:hug:

AZ-Di

11-25-2013 01:44 PM

Quote:

Originally Posted by Kevscar (Post 1031509)

AZ-Di I won't be sending anybody anything anymore or doing anymore posting, I accidently deleted everything 4 years well over 3000hrs of research, all the papers the letters the petitons the graphics gone and due to the lack of people willing to stand up and fight,, US petition only needed 25,000 from 1.9 mill sufferers in 30 days, less than 800 signed. In the UK only 5 or 6 have said they e-mailed their MP's so I'm done

NOoooooooooooooo! OMG that made my heart sink

eevo61

11-26-2013 01:24 AM

good luck nanc

i'm so scare in my case dr never wanted to order an X-ray to make sure everything is fine,i had such of pain for months already and his solution keep being re position my scs battery in my abdomen,is a nightmare i requested a 3rd independent opinion but my good luck it will be until jan mean while i will keep living with back and buttock pain for almost 2 more months n considering is a wc case my employer keep denying me from coming back with light duty i really want to give up and take off as well but i did have relief after my surgery in jan 2013 on my injury site which is my right foot i won't be able to have surgery there unless dr release me from crps treat condition,I'm driving myself crazy thinking that soon i will be unemployed,i hope u get better soon thanks for all the info you provide us thats a great help and a guide as well,hope u the best and God bless u and all out here.

RSD ME

11-27-2013 04:31 AM

Hi Nanc, I hope that you feel better soon. Take care.

eevo61

11-27-2013 10:50 PM

happy thanksgiving Nanc

hope you get better soon and don't worry ,we all here waiting for your good news soon,God will finally give you the relief you deserve,blessings to you and your family from one more new member of your rds/crps family, Jesika aka eevo61.
:grouphug: blesssings to you all.

Nanc	12-06-2013 11:48 PM

Surgery date set...

So the date for my SCS removal has been set for Jan 9th. Will be happy when this is over with!

Also, found out this afternoon that the bladder procedure and biopsies I had last week confirms that I do indeed have interstitial cystitis :( It really sucks because, like with RSD, I cannot tolerate any of the meds or treatments they use. So, it will be following a special IC and low oxalate diet...that on top of my gluten intolerance and allergies will make it extremely difficult...ugh!

Brambledog

12-07-2013 03:49 AM

As a fellow coeliac Nanc, my heart really goes out to you...it does indeed suck. Completely. But as with the gluten-free diet, hopefully eating this new regime wil help you feel better.

I'll be thinking of you, and have all fingers and toes firmly crossed ;)

Bram.

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