Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-22-2013, 10:34 PM #3
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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Quote:
Originally Posted by AZ-Di View Post
This has to be a difficult decision, I know the implantation was a pretty big ordeal. How long have you had the SCS's.

I guess as long as you've been on this forum, you must know thehuge amount of prevention and precaution you have to take before any surgery? I've read some of the bladder issues you've had and it sounds very necessary.
If you don't have it already, I'm sure Kevscar will be sending you hospital/surgical protocols. I got them as a reminder and it helped!
Please keep us posted on how it all goes.
Thanks! Yeah, definitely a tough decision. I had them implanted in June 2011 and a revision on the thoracic one in November 2011. If I had to do it all over again, I would get them. They helped me so much. They helped me gt through another 1 1/2 years of work...I know I would not have made it through without them. The thoracic lead has migrated again, the battery is twisted, I get back pain/pressure/spasms when they run...the effectiveness has worn off.

I liked the new doctor I saw today and knew I wanted a neurosurgeon to do this. He recommended removal over a revision. I agreed.

I have seen Kevscar's info in the past, I will look for it again. Yes, the procedures are necessary and I will be happy to have them both behind me.
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