Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-27-2013, 10:41 PM #1
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Default crps and work drives me crazy

Hi everybody and happy early thanksgiving,even though with our conditions sometimes we have nothing to be thankful about but we got bless with be alive,suffering,but still alive.
My case for those who had read my pots is been going on not for too long is only about 2 years, is a workers comp related injury which had limited the does and don't aloud by my insurance,california laws.well i had a 3rd or 4th revision from my pain management md with same result,nothing wrong with the surgery but the pain on my buttock area where my generator is had been increasing day by day,i went to emergency room expecting to be treated for the awful pain i had and to try to obtain an X-ray or at least an X-ray order but no luck,the dr who saw me did know have and idea about my condition and i swear ,i almost bent myself on the floor and beg her for and X-ray telling her she did not need to explain what is on it just gave me the image and i will take it to my pain management md but no luck she sent me back to him,he saw me again and we talk about what happened and his response was still well i never had a patient who complain or have so many side effects we have to wait for the ins to authorize to reposition your device and thats it,well i went back to my foot specialist and to my lawyer and requested a 3rd independent evaluation on my whole case because my dr is leaving me with the same option for many months,guys, i work for a company which is also had a union contract which gave me only 15 months on medical leave and my review will be in january 2014 thats mean 1 year already going back and again with no results,gosh,i never though in my life that i will be in this situation,I'm only 39,not been able to go back to work because my manager does not aloud me to comeback with restrictions and that is far from happening,soon i will lose my job and that scares me,please,anyone out there must had the same case or similar case,please,give me any advise,i can see clear now but just start to feel angry about the whole situation,th crps on my foot which had no carlidge is control with the scs unit but that generator created a whole new scenario,i'm able to walk and stand more since january 2013,i can go back to work with same light duties i had back on 2012 but some how the company changed their point of view and stop me from coming back,i'm desperate now i see like i said before no ending to this long road,hope someone can gave an advice and how approach the situation,i don't want to loose control of my life and condition,but is so hard to think clear when your life is surrounding with darkness and no clear answer,i one my job i know we all do but i can be patient when i feel that everything is falling down,thanks for your help and support i hope we all can said one day that we won the fight against crps,thats my dream thanks for listen (reading) that meant a lot (sorry for my missed spelling,english is not my first language but i appreciate all your effort to understand me,i guess pain and love don't recognize any differences) love and blessings to all.
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Old 11-28-2013, 10:03 AM #2
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Default We hear YOU

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Originally Posted by eevo61 View Post
Hi everybody and happy early thanksgiving,even though with our conditions sometimes we have nothing to be thankful about but we got bless with be alive,suffering,but still alive.
My case for those who had read my pots is been going on not for too long is only about 2 years, is a workers comp related injury which had limited the does and don't aloud by my insurance,california laws.well i had a 3rd or 4th revision from my pain management md with same result,nothing wrong with the surgery but the pain on my buttock area where my generator is had been increasing day by day,i went to emergency room expecting to be treated for the awful pain i had and to try to obtain an X-ray or at least an X-ray order but no luck,the dr who saw me did know have and idea about my condition and i swear ,i almost bent myself on the floor and beg her for and X-ray telling her she did not need to explain what is on it just gave me the image and i will take it to my pain management md but no luck she sent me back to him,he saw me again and we talk about what happened and his response was still well i never had a patient who complain or have so many side effects we have to wait for the ins to authorize to reposition your device and thats it,well i went back to my foot specialist and to my lawyer and requested a 3rd independent evaluation on my whole case because my dr is leaving me with the same option for many months,guys, i work for a company which is also had a union contract which gave me only 15 months on medical leave and my review will be in january 2014 thats mean 1 year already going back and again with no results,gosh,i never though in my life that i will be in this situation,I'm only 39,not been able to go back to work because my manager does not aloud me to comeback with restrictions and that is far from happening,soon i will lose my job and that scares me,please,anyone out there must had the same case or similar case,please,give me any advise,i can see clear now but just start to feel angry about the whole situation,th crps on my foot which had no carlidge is control with the scs unit but that generator created a whole new scenario,i'm able to walk and stand more since january 2013,i can go back to work with same light duties i had back on 2012 but some how the company changed their point of view and stop me from coming back,i'm desperate now i see like i said before no ending to this long road,hope someone can gave an advice and how approach the situation,i don't want to loose control of my life and condition,but is so hard to think clear when your life is surrounding with darkness and no clear answer,i one my job i know we all do but i can be patient when i feel that everything is falling down,thanks for your help and support i hope we all can said one day that we won the fight against crps,thats my dream thanks for listen (reading) that meant a lot (sorry for my missed spelling,english is not my first language but i appreciate all your effort to understand me,i guess pain and love don't recognize any differences) love and blessings to all.
I am so sorry you are going through this..It makes it hard when you know you need to work.I still work,but it is hard.I push myself,which makes it worse later.No one understands us.Including pain management doctors.The one I go to,is at wits end,not knowing what to do with me.He wants to send me to someone else.I just say I am ok.Even if I am not because I do not want to travel all over.Its hard for me.Its hard to drive.I am glad for cruse control.
Have you ever thought of looking for a easier job?I am now a bus aide..That means I work a morning run,come home go back in the afternoon.It works out great,because I have time to go home and use the heatingpad,and take meds.IF needed..You could maybe be a driver or aide..I was working 8 hours a day..I work 4.5 hours a day,make more money now then I did before..Just something to think about..They will train you..Good luck..I will pray for YOU
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Old 11-30-2013, 01:44 AM #3
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The reality for some of us is that we won't ever return to work.

You might need to apply for SSDI. With a combo of a decent WC rating and SS, hopefully your income would be livable. (Approval can be fast, or can take yeas.)

Did you submit an application for short term disability with the state of CA? You would likely not have collected yet if you're receiving TD benefits from WC, but they could come in handy at some point. I think you only have 12 months after you stop working to apply if you haven't yet...
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Old 12-03-2013, 10:47 PM #4
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Originally Posted by LIT LOVE View Post
The reality for some of us is that we won't ever return to work.

You might need to apply for SSDI. With a combo of a decent WC rating and SS, hopefully your income would be livable. (Approval can be fast, or can take yeas.)

Did you submit an application for short term disability with the state of CA? You would likely not have collected yet if you're receiving TD benefits from WC, but they could come in handy at some point. I think you only have 12 months after you stop working to apply if you haven't yet...
i have not idea i can claim std from the state at the same time i will check about that i had never been in this situation i don't know much about laws and honestly i thought by getting paid from my wc was about it but no i had not apply yet and every month bill payments are getting tide then ever,thanks for your advise and info i will inquire as soon as possible,thanks and happy holidays for u all.
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