Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-03-2013, 02:34 PM #1
Lottie Lottie is offline
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Lottie Lottie is offline
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Join Date: Nov 2013
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Default New member with RSD / CRPS

Hi all! I have been reading this forum for a few months before committing to being a member. I have been impressed by the number of really caring people who take the time out of their day to support someone in need.
My goal by joining this forum is to stay positive, gain new information, and pass along help to others. My story in brief: I have had 4 spine surgeries for Degenerative Disc Disease in my cervical spine and lumbo-sacral spine. I have lived with chronic pain for 12+ years. In July 2011 I woke up from the 3rd spine surgery to mind boggling pain in my right lower leg/ankle. The lower leg & foot swelled, became cold and looked pale. The pain was excruciating and I could not walk more than a few steps. After a few weeks the burning set in. I now know I have RSD/CRPS. The good news is that I began physical therapy right away including intensive aquatic therapy. I am convinced that aquatic therapy is the ONLY reason I am still able to walk short distances today. I completed an entire year of therapy (three times per week), and continue now on my own with occasional "tune ups" from my physical therapist. It has been 2 1/2 years and I am just now beginning to accept that this is going to be a life-long challenge for me. I am open to learning new ways to manage this challenge!
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moosey2me (12-03-2013)

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Old 12-03-2013, 03:38 PM #2
Brambledog Brambledog is offline
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Hi Lottie and welcome

Sorry you have to be here.... but it's always to have a new face around on the boards!

I'm about halfway into my third year too, so I know what you mean lol. It's definitely a journey! I was in a wheelchair and on crutches for over a year of mine, but physio, exercises and massage is what's got me back on my feet and getting on a bit better. The pain is there, but I cope better at the moment - long may it last!!!

Hope you have a good day today, and enjoy reading around on the threads. There's a great bunch of supportive folk on here with some really useful ideas. Got me through a few hard times...

Take care and keep posting

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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moosey2me (12-03-2013)
Old 12-03-2013, 06:20 PM #3
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Quote:
Originally Posted by Lottie View Post
Hi all! I have been reading this forum for a few months before committing to being a member. I have been impressed by the number of really caring people who take the time out of their day to support someone in need.
My goal by joining this forum is to stay positive, gain new information, and pass along help to others. My story in brief: I have had 4 spine surgeries for Degenerative Disc Disease in my cervical spine and lumbo-sacral spine. I have lived with chronic pain for 12+ years. In July 2011 I woke up from the 3rd spine surgery to mind boggling pain in my right lower leg/ankle. The lower leg & foot swelled, became cold and looked pale. The pain was excruciating and I could not walk more than a few steps. After a few weeks the burning set in. I now know I have RSD/CRPS. The good news is that I began physical therapy right away including intensive aquatic therapy. I am convinced that aquatic therapy is the ONLY reason I am still able to walk short distances today. I completed an entire year of therapy (three times per week), and continue now on my own with occasional "tune ups" from my physical therapist. It has been 2 1/2 years and I am just now beginning to accept that this is going to be a life-long challenge for me. I am open to learning new ways to manage this challenge!
Glad you joined us.We are all like family.The good thing is we all know what we are going through.I know I always felt alone.I joined here,and I feel these guys get me..So hold tight its going to be a up and down journey
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Lottie (12-04-2013)
Old 12-04-2013, 01:30 PM #4
Lottie Lottie is offline
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Lottie Lottie is offline
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Talking thank you!

Thanks so much Brambledog! I have to admit YOU are part of the reason I committed to joining this group! I find your posts to be positive and wise. I have never joined a forum before because I don't like to wallow and complain. But, you and others I have read do a great job of voicing the difficulties and then looking for solutions and I like that approach! Keep up the great work!
~ Lottie
Quote:
Originally Posted by Brambledog View Post
Hi Lottie and welcome

Sorry you have to be here.... but it's always to have a new face around on the boards!

I'm about halfway into my third year too, so I know what you mean lol. It's definitely a journey! I was in a wheelchair and on crutches for over a year of mine, but physio, exercises and massage is what's got me back on my feet and getting on a bit better. The pain is there, but I cope better at the moment - long may it last!!!

Hope you have a good day today, and enjoy reading around on the threads. There's a great bunch of supportive folk on here with some really useful ideas. Got me through a few hard times...

Take care and keep posting

Bram.
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moosey2me (12-04-2013)
Old 12-04-2013, 06:40 PM #5
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
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Brambledog Brambledog is offline
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Location: England
Posts: 1,122
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Aww Lottie

!!!!

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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moosey2me (12-04-2013)
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