Last night I slept horribly. Didn't get to bed until after midnight, which is not odd because it takes me a while to calm my body enough to sleep, but usually it's an hour earlier. I have to get up at 6:30. I didn't fall asleep for some time, then kept waking up.

Every time I would fall asleep DH would wake me up and tell me to turn over because I was kicking him. Sometimes he just goes to the couch. I don't know why he didn't this time.

This morning I'm at a 7/8 and that is resting. My thighs hurt horribly. They have hurt more recently. They hurt the same when all this started, before I was put on meds. I don't want to take more anti-seizure meds. I'm waiting for a pain pump.

I don't think there is anything to do other then go home and sleep. The only thing I have for breakthrough pain is MMJ and I obviously can't use that at work.

At least my brain isn't super foggy today. I am dying, I just want to go home and cuddle up with my down comforter (and cats) and not move. I'll leave early if it gets to a point where I want to cry.

It's so easy to underestimate the importance of getting a good night's sleep. When I was at my worst...I couldn't sleep more than 15 minutes at a time and went many nights with no sleep at all.

The tdcs treatments I did didn't seem to really affect my pain levels much...but they got me sleeping better and as a result I generally feel a lot better both physically and emotionally. Pain levels still get to a 7-8 every day (with bad days being a 9-10)...but I feel like I can handle it all better when I am rested up.

I'm sorry you had a rough night and I hope you can get some rest tonight and feel better in the morning. Take care.

Sleep's just about the most important painkiller I have I think.... I had a patch of a few months where I just couldn't sleep more than a few hours at a time, and I was just in pieces. Everything went to hell in a hand basket, including my sanity and my ability to control my emotions. It was horrible. Took me ages to find a way of sleeping better again, and although I know what worked for me to start me getting to sleep earlier (thanks Bagpuss!), I'm still not sure why the time I slept increased again. I think it was just gradual, and a bit of a chicken and egg thing...

There are no easy answers. I still get some awful nights, and my pain the following day is always, always worse. Get whatever sleep you can and try a few different methods to try and relax yourself a bit more. I know relaxing seems a million miles away when you feel so terrible, but it can happen, and sometimes because of surprisingly small things...

I wish you all the luck in the world. Take care of yourself, and I'll be wishing you plenty of Zzzzz's tonight.

Bram.

I went to a sleep study quite a few months ago and they said I had "alpha disruptions in my alpha-delta sleep state". Which meant I was in pain while sleeping so I never sleep well. I always need one day on the weekend to sleep in until noon.

I'm hoping that once I get the pain pump I'll be able to sleep better, and thereby help my whole day. It's just days like this are bad. I have two more hours of work. Ugh. I just keep doing deep breathing.

I agree sleep is the best pain controller. My DH told me today you need to sleep. No crap I need to sleep, if only it was that easy. My loving doctor put me on Ambien, that is the non sleep-sleeping pill. I believe it helps me stay asleep but it does nothing to help me go to sleep.

Yes sleep is important! I was up all night between both of my SIL's calling or texting me all night because 1 is in pre term labor and the other her baby just had surgery and is now sick and went back in the hospital this morning. So between them bugging me all night and all the stress from it, by this morning the pain was horrible and so I finally turned my phone off so I could get some sleep and that helped greatly!