I am sorry to hear about your daughter I am 14 almost 15 and for the last 2 years almost i have been in a huge relapse of RND. It was really bad and at school they were pushing me in a wheel chair since otherwise it would take me forever to get to classes. Once i was 20 minutes late to a class that was just down the hall, so I know the feeling just whatever you do don't let her give up that the worst thing that could happen. As long as she keeps moving she'll eventually get through this remind her that. Tell her to stay strong.

My 14-year-old also has CRPS. She has been to both the Mayo (in Rochester, MN) and Cleveland clinic pediatric pain rehabilitation programs both have been helpful in helping her to regain some of her function and help her to deal more with the pain, but not have not done much to reduce her pain. Both programs are good and some kids seem to have great results with them while others have moderate or little results. They are both a little different: Mayo concentrates more heavily on education and coping skills, while Cleveland puts a little more emphasis on physical therapy. Just like what has been said by others in the forum, different things work for different people and it's hard to guess what the "perfect" solution is for any individual. You can private message me if you'd like to talk more.

I have talked to people who have had great results with both the Boston and Philadelphia programs. One thing that multiple providers have told me is that from their clinical experience, pain often does not go down significantly until a child returns to full function. My daughter has not been able to do this, and I wonder if this has something to do with the lack of relief. This would be one argument for the highly aggressive therapy that they offer at Philadelphia, however as InHisHands mentioned, it doesn't work for everyone.

Here is a link to a list of pediatric pain management programs. All have slightly different offerings; one might or might not be useful for your daughter. http://www.americanpainsociety.org/u...d-09-14-12.pdf

Best wishes. I'm sorry that your daughter and family are going through this.

Lori

I am so sorry to hear about your daughter going through this! Get her in to a Pain Psychologist!!! It can help immensely with the emotional strain, and give some hope and confidence back t her!!! Look it up in you area, it has helped me tremendously!! We do hypnotherapy, heart-math and biofeedback.

Pain psychologist/emotional component to CRPS
 

I also think it's a good idea to get her to a pain psychologist or health psychologist - if you can't find one of those specialties, any good psychologist or other certified counselor should also be helpful, but there are some unique issues with chronic illness/chronic pain that they will be more experienced in addressing. If you don't know where to start finding one, you can go to http://locator.apa.org/index.cfm?event=search.text and under "I'm looking for help with," choose "chronic illness," "pain management," or "health."

A number of folks have talked about whether or not there is a psychological trigger for CRPS. I've looked at a lot of research and I think there is some evidence on both sides of the argument, and I've come to the conclusion that it is not worthwhile to try to figure it out (which is pretty much the conclusion that my own daughter's pain psychologist said they she has reached). In the end, being in long term pain effects someone psychologically AND your psychological state effects your pain level. So the bottom line is that addressing psychological health should be part of an overall treatment plan. It really doesn't matter if emotional factors were part of the cause, the will inevitably be part of the problem (to a greater or lesser degree, depending on the person) once the disorder is developed and receiving support and learning coping skills will be helpful.

Also, here's a good book for parents of kids in pain: http://www.amazon.com/Conquering-You.../dp/0060570172. I found it very helpful.

Lori

RSD/CRPD therapy
 

I am a sports medicine chiropractor with 50 years in medicine,PT,chiropractic.

These two conditions RSD/CRPD as well as many orthopedic conditions causing pain need the combination of manipulation as well as soft tissue therapy. I would recommend a chiropractor who works with sports teams and has lots of experience in treating severe injuries.

If you can find a chiropractor who does extensive soft tissue therapy such as myofascial release technique, transverse friction massage and manipulation that should be enough to correct most people with this condition around 15 treatments maybe a little more for severe trauma like falling off a horse,motorcycle,bicycle. Very few people will be well in less than 15 treatments.

If you can't find a chiropractor who can relieve your pain find any sports medicine massage therapist, PT. who does myofacial therapy.

The key word here is very skilled manipulation (not a part timer) and a therapist who does exclusively myofascial. **