Caring PEOPLE
 

As I read these post,one thing truly comes to mind..We all care..Rsd is not easy to deal with.I know I am working towards 4 years in Jan..I was hoping to feel better by now.I was a person who walked twice a day with my dog,now I can barely walk.I was using crutches ,and wheelchair in the beginning all the time.So I am greatful that I can walk without ,short areas,but if I feel unstable I use a cane or wheelchair..I am thinking about getting adult walker with a seat.So I can take a brake...I also have a electric scooter,that I use a lot while camping.I just hate the thought of depending on a walker..Makes me feel old..I am 48,and feel younger on most days ,except when I get a gotcha moment.. I have had a lot of meds. too.either they bother my stomach or reaction..I have not found one yet that truly helps.Every day there is pain.I cannot remember the last time I was pain free..That is really scarery. But I never give up..Waiting for that someday..
Do not ever forget we are here for one another.I know I hate it when someone else gets this,but I feel worse knowing it is a child..or young teen..
You will learn a lot here.RSD issues,,like muscle jerks and headaches,sweats,chills,burning,pain,tired,sad,alo ne...but then again we have each another here.. Glad you joined..Best wishes:grouphug:

Hi Blake, welcome! Sorry you are hurting. You've come to the right place. :-)
I do not have skin sensitivities either. I get cold / hot sensations but not super sensitive like some folks. You mentioned swimming ......keep moving in the pool! It has done wonders for me!fc

Hi lottie and moosey, thanks for the responses. I'm sorry you're feeling old, moosey. I know I feel 95 each and every day, and I'm 16!:D I hope your journey ends soon as I hope everyone elses does with this terrible pain. Lottie, it's interesting that you swim. It certainly helps me a lot with my temperature issues/body temp issues. I will continue to swim as it is fun and beneficial! :hug:

Hi & Welcome but rather you did not have need to be here.

Everything I've read is that there is no "cure" for this, there isn't even a definate plan of treatment. such as, Kidney disorders have dialysis, Crohn's disease has Humira, Cancer treatments are Chemo and radiation and all sorts of definative testing.
Everything for this is pretty much an individualized stab in the dark. Most drugs prescribed are "off label" originally made for another disorder. Treatments are the same too.
However, it's pretty consistent that youth is on your side. It's far more prevalent that at least remission is FAR MORE likely if you're very young. Usually under age 25 or so. My P.M. (She's awesome) has CRPS & is in remission but was I think she was 17 when they got her into remission & she has stayed there!!! Thank heavens because that got her thru university and Med. school and now a great Pain Mgt. Dr.
Keep us posted on your happenings.

Hi crpsage16, your comment made me smile in that ironic kind of way.... I feel about a hundred myself this morning lol ;) Every single joint seems to be protesting about even having to slide out of bed. I make a point of getting up, showering and dressing every day because I know if I start not getting up in the morning, I'll end up a bed-bound hermit, but today bed never seemed so appealing.....what with the cold grey skies, and the knowledge that I'm not working until this afternoon!!

I used to love swimming, but now it's that horrible cold when I get out of the water that stops me - it slices through my left side like knives and i totally tighten up, which undoes any good from the swimming : After Christmas I'm going to look at a private hydro pool near me and see if that's warm enough for me to try. Better make sure I'm earning enough...

Take care guys and have a better day today :)

Bram.

Haha, Bramble. It's funny because today I didn't get out of bed until 2 pm because I was feeling the same way. Here's a reccomendation for swimming. There are 24 hour fitnesses, and you can go anytime you want. They have a hot tub, a sauna, and a heated pool, so you'll never be cold again! :D:grouphug::hug::wink::rolleyes:

I am blessed to have access to a warm water (91 degrees F) indoor pool. I can do my own thing or join in a "arthritis class". It is wonderful! Being non-weight bearing in the water eases my painful leg and foot some. I can also do some aerobic exercise which has become very challenging on land. I used to be an avid walker, I miss that so much. How are you doing blake?

Hi Lottie, I'm actually doing ok. Rather than the pain, I'm now swimming every day, which is nice, and it eases my pain alittle bit. Pool is the way to go with this if you've tried everything else for relief in my opinion :). + its fun :D

Hi Blake, I'm glad you're swimming and doing better. My thoughts are with you and I hope you have a very happy holiday season with your family. Take care.

Hi blake! That is awesome good for you! You sound like you are coping better today. How are you doing with your friends?