Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-11-2013, 03:44 AM #3
Brambledog Brambledog is offline
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Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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I'm sorry CC, that's so unfair and must be freaking you out Mine seems to be spreading fast at the moment too, for no apparent reason at all, and you do feel like you are being taken over piece by piece... I had the 'why me's yesterday, it just felt so overwhelming.

Don't give up hope, ok? And don't blame yourself for making an impossible decision - hospital might not have been the right answer, and I don't think either was an easy choice. I'd have gone for the shot as well, if that's any comfort. Can us go and see your main doc and ask about some different treatment options, meds, pain relief or treatments? It's not right that you have so much pain.

I know I say this a lot but do some deep breathing exercises if you can, just to calm you down a bit. I use them a lot to get control of the panic or just that tightness from holding on to the pain. They do help.

Take care of yourself and get some help wherever you can. You deserve a break.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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