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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   American Disabilities Act and RSD (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/198546-american-disabilities-act-rsd.html)

Allanira 12-14-2013 12:24 PM

SSD still isn't going to be easy to get. It's supposed to be hard to get to weed out the laoafers that just don't want to work. You still have to work at getting and keeping your SSD benefits. I'm working just on getting VA disability then will work on the SSD benefits. The only work I'm qualified for is physical labor and I can't do that with the pain I'm in. I'm not any where near qualified to hold an office job because I get side tracked too easily, and I can't concentrate enough for it. So my next step is getting SSD benefits.

edever34 12-14-2013 03:11 PM

Yes RSD/ CRPS does have a code, HOWEVER the last I knew it was not on the "automatic" list thereby reviewed on a case by case basis-leaving the patient and Docs to prove the case , which in many cases has not been easy!!!!
IF THIS HAS CHANGED , please let me know. Appreciate your imput on this!!! Gentle Hugs-Carol

fbodgrl 12-15-2013 12:03 AM

You are correct. It is not automatically approved. I'm in the process right now. Automatically denied, filed appeal and waiting on hearing. I filed October 2012. My hearing isn't until March 2014.

edever34 12-15-2013 02:04 PM

Quote:

Originally Posted by fbodgrl (Post 1037107)
You are correct. It is not automatically approved. I'm in the process right now. Automatically denied, filed appeal and waiting on hearing. I filed October 2012. My hearing isn't until March 2014.

That is awfull!!!!!! and soooo unfair-why we need more awareness out there!!!!

I was lucky-got approved first try-no attorney- in 20 days! So gratefull.

edever34 12-15-2013 02:06 PM

Quote:

Originally Posted by fbodgrl (Post 1037107)
You are correct. It is not automatically approved. I'm in the process right now. Automatically denied, filed appeal and waiting on hearing. I filed October 2012. My hearing isn't until March 2014.

Would also suggest that you contact/ write to all of your representatives-Senators etc. and tell your detailed story. I know personally that this has worked and gotten approval without hearing.

AZ-Di 12-15-2013 03:23 PM

Quote:

Originally Posted by fbodgrl (Post 1037107)
You are correct. It is not automatically approved. I'm in the process right now. Automatically denied, filed appeal and waiting on hearing. I filed October 2012. My hearing isn't until March 2014.

That really is too long of a backlog, hang in you're almost there.

fbodgrl 12-15-2013 05:40 PM

It is! They have all my records and written statements from my doctors stating I can not work.

In my denial it says they agree I can not work at any of previous jobs, but due to my work history, age and education I could do something they even said specially light duty using my hand for fingering/handling (or something along those lines). I have no feeling in my dominant RSD hand. Basically what they listed is all the things I CAN'T do. Not to mention they couldn't even be bothered to have one of their doctors even exam me.

murgir 12-15-2013 05:42 PM

Quote:

Originally Posted by edever34 (Post 1037223)
That is awfull!!!!!! and soooo unfair-why we need more awareness out there!!!!

I was lucky-got approved first try-no attorney- in 20 days! So gratefull.

Did you go into a detailed description of your RSD symptoms and life changes or just state you had it. I have not applied yet and also live in KY. I think it varies from state to state. How long have you had it? Did you apply online or by phone?

fbodgrl 12-15-2013 07:22 PM

Quote:

Originally Posted by murgir (Post 1037281)
Did you go into a detailed description of your RSD symptoms and life changes or just state you had it. I have not applied yet and also live in KY. I think it varies from state to state. How long have you had it? Did you apply online or by phone?


Everything was VERY detailed. My long term disability company provided representation for me. They assisted in filing the original claim and making sure all the questionnaires for follow up, etc. were answered completely and appropriately.

I have not been working since September 2011 when I had my 2nd surgery. I believe the RSD started then. I had another surgery January 2012. The RSD was officially diagnosed in May 2012. In addition to the RSD I have nerve damage in the same arm. Severe tendinitis in the right arm, RA, chronic migraine, tarsal tunnel and plantar facitis and a bone spur m IBS and I'm sure I'm missing stuff.

moosey2me 12-16-2013 11:42 PM

best wishes
 
Quote:

Originally Posted by fbodgrl (Post 1037304)
Everything was VERY detailed. My long term disability company provided representation for me. They assisted in filing the original claim and making sure all the questionnaires for follow up, etc. were answered completely and appropriately.

I have not been working since September 2011 when I had my 2nd surgery. I believe the RSD started then. I had another surgery January 2012. The RSD was officially diagnosed in May 2012. In addition to the RSD I have nerve damage in the same arm. Severe tendinitis in the right arm, RA, chronic migraine, tarsal tunnel and plantar facitis and a bone spur m IBS and I'm sure I'm missing stuff.

I sure hope it works out for you..Best of luck,take care:hug:


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