Hi murgir, Well... I take 1200 mg gabapentin 3x p/day, and one 350mg soma at night. that's a typical day. today, and this is the first time I've done this, I have been taking a 350mg soma every six hrs starting at 3 a.m. this morning. Then I added a tramadol about 6 a.m. By 9 a.m. I knew things were not getting better so I added a Roxicodone 5mg (which is the equivalent of a 5/325 Percocet, it just doesn't have the acetaminophen). I followed that up with a Zofran because otherwise I just feel like I will get sick. That took the edge off, or at least kept me from crying b/c of pain. At 3pm I took a tramadol and another soma. It's 6pm here now. I have laid around all day. Trying to rest my back. Soon I will take a hot bath, and return to bed.

I get a BLAZING headache from the roxi or anything opioid. I hope to discuss that with my doc soon. Until then I am having a soda for the caffeine. Perhaps that will help my head.

I have had to use my walker all day to get my initial moment going in my legs. Right now I feel a dull burn in my legs (crps). The pain I am dealing with in my back just ramps up the CRPS symptoms.

Hope that helps somehow. :hug:

So you take a total of 1200mg of gabapentin or 3600mg a day? Does your pain ever get better or are you ever pain free? I am a pain wimp. I am so scared. My calfs are aching as well as my good arm now. When you are able to get out are you always in pain?

I take the maximum dose of 3600 mg per day. And here's the kicker, it's really not working as well as it did months ago and my CRPS symptoms have been regressing for a while now. I believe the gabba to be the issues I am having with my stomach. Either that or it's a gallbladder issue. I think I am going to have to try another drug soon. Sucks because it really was helping for a while.

Am I ever pain free? Gosh I wish, but no. Just levels and degrees of pain and tolerance. The more physical I am the more pain I will have OR the more I sit for a long period of time = more pain and spasms in my legs, arms etc. I also get very weak. Like I've run a marathon and my legs are spaghetti noodles.

I started on 300 a day has been upped to 900 over a 3 week period and I am having pain worse in my good arm and not my bad one tonight!!! One week with 900 mg and pain already. Have you ever been on lyrica or is the same as gabba. I was wondering if you switch from one to the other if it would help. I can see my gabba dosage increasing quick. I do not have pain all the time yet.

Hi Moosey! We got snow mixed with sleet - lovely. I used to live in Syracuse , New York so I know all about those big snowfalls! Use all your strategies to get some comfort - do warm water baths help you? AZ- Di you are so right! I have mistaken my loved ones behavior as being upset with me, and usually that is wrong. They get fed up with CRPS too!

Oh no! That stinks!! I am so sorry. I used to have "good" ____________. The thought or feeling of spread can be horrible and scary for sure. I hope that's not what is happening.

Um.. yes, changing meds maybe required. It might be required several times along the path. It's weird because you find a combo that works, and then some time later... not so much. I have tried lyrica but at the time neither one (gabba or lyrica) was helping. I am ready to give that or whatever else they can come up with a shot. I have a new neuro doc that I will see in about a month. I really hope he can help me. I hope you can find a combo quick that works for you too. At least you are having some pain free days. enjoy them as much as possible. Stay as active as possible too, and try not to over do it, which is exactly what I did yesterday.

I hope tomorrow is better! Work... ugh! I hear ya on that too. My back is still spasming and I'm suppose to sit and edit for hours. I just don't know that it will happen. I keep falling further and further behind with work. :( So very frustrating!

Vrae this is exactly like me with the Gaba, it seemed to be helping for a while, and then it was just gradually getting out of control again, then my stomach got really bad....and because of two nasty bouts of sickness, diarrhoea, cramps etc where I couldn't keep anything (including pills) down, I realised that it just wasn't making much difference anymore.

I stopped taking it, and my stomach got better. It was as clear as that. My pain levels didn't change much for about a week, then when the stabby pains got too bad I went back onto Lyrica and have stuck with it since on a low maintenance dose that seems to get rid of the worst pains most of the time. I take that over those dreadful stomach problems every day of the week. My pain doc said its not unusual for Gaba to stop being as effective, also the stomach problems are known. Some tolerate it well for years, others just don't.

Finding meds is different and difficult for us all, there just isn't a set of meds designed for CRPS, so we are all experimenting, and many of us taking things 'off-label' that help a bit but were never designed to treat it. One day perhaps someone will make something just for us tha actually works reliably...:rolleyes:

Hope you are all feeling a little better today. I'm sorry things are so hard, it's not fair. Good luck :)

Bram.

Meds...
 

Sounds like we all are in the same boat..I have tried same meds..with gab.. had the same issues..I have pain every day..I cannot remember a painfree day..Meds. are always changing.They work for awhile then they do not..I go to pain mang.. in Jan..I wish I did not have to go anymore..Its always the same thing...He says why??what did you do...RSD just happens to do what it wants and when...well hang in there.:hug:

better days
 

I hope you are better today..I am better today..Some pain,but not as bad as yesterday..Went to work came home,in bed with heating pad..Have to return to work at 1....Snow added up to about 12 inches in total Gloversville ny..the cold makes everything worse..Have a better day....:hug: