Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-02-2014, 09:31 AM #1
Cake Cake is offline
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Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Default Baclofen doses?

Hi everyone

Please forgive me for not being on here for over a year or so. I tend to " just keep going" as my life is a rollercoaster but my rsd is now in both arms and my right leg and my meds aren't cutting it anymore, so I'm back to looking at my treatment options and trying to work out what to do next.

I'm on 50mg ms contin, 200mg amitriptyline and 50mg baclofen daily, with endones for bt pain. We've been upping my morphine bit by bit but I'm wondering if we should look at upping my baclofen instead, given that muscle cramps and spasms are my main problems.

I've been on 50mg for over 4 years (since before we lost Olivia) after being on 25mg daily for the previous 9 years.

Is 50mg a standard dose? Are any of you on/have been on more than that, and if so, how much?

I had a rough spell with my kidneys a few months ago so I'm even contemplating a baclofen/morphine pump, but I'm unsure about whether to go down that road. Thats why I'm trying to find out more about baclofen doses first

Any feedback on this would be great, thanks guys!
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS.
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