Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-13-2014, 12:08 AM #21
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Thanks again, you guys are awesome! Demerol has been the pain med I have been taking for quite some time. I have tried everything else...you would not believe my allergy/can't tolerate medication list (it always throws them at the hospital). My dr has racked her brain trying to come up with something and no luck. I cannot take anything in capsule form because I am deathly allergic to pork = gelatin capsule. No lyrica, cymbalta, tramadol, neurontin, nucynta, dilaudid, morphine, methadone, fentanyl patch, percocet, the list goes on and on...I am truly at a loss. I may call my PCP tomorrow anyway to ask her since she is the one who manages all my meds.

I figured I would see how I am in the morning, if more blood comes up and if so I will call the dr. My husband goes back to work tomorrow and he works an hour from home. His sister said for me to call her if I need someone, she can get here from her work quicker than he can. My mom and dad wanted to come help me out but my sister had her achilies repaired the same day as my surgery...they needed to stay in town and help her.

Oh nothing is ever easy is it??

Thanks again!
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Old 01-13-2014, 09:00 PM #22
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Quote:
Originally Posted by Nanc View Post
you would not believe my allergy/can't tolerate medication list.

I cannot take anything in capsule form because I am deathly allergic to pork = gelatin capsule. No lyrica, cymbalta, tramadol, neurontin, nucynta, dilaudid, morphine, methadone, fentanyl patch, percocet, the list goes on and on...I am truly at a loss. I may call my PCP tomorrow anyway to ask her since she is the one who manages all my meds.

Oh nothing is ever easy is it??

Thanks again!
I couldn't agree more right now. No.. nothing seems easy. I'm so sorry Nanc! And my goodness, that is so tough that all those meds and more are on the no list. That just makes this ride even more fun hu? ... joy! <sigh> I just hate that for you. I do hope that they can find something to get you so relief quick! I hope you feel better soon.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 01-14-2014, 09:44 AM #23
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Hey finz! Thanks for your reply. Surgey went pretty well (obviously since I am on here right now ).

Regarding the SCS's...I had two (cervical and thoracic) implanted June 2011 and a revision on the thoracic one Nov 2011. They helped me greatly, so much so that I was able to work another year and a half. I was losing the use of my hands. The SCS's helped me with desensitization big time! If I could go back in time, I would do the same thing and get them.

The issues leading up to the removal is that the thoracic paddle lead migrated up and that battery was twisted and hurting. (that battery was moved to my front right side with the revision in Nov 2011) Also, every time I had either one of them on, I would get pain and spasms in my lower back. Reducing the stimulation wasn't effective for me.

Hope this makes sense, just took some more pain meds

Nanc
Not sure if I got this right...so I thought I would ask..did you or do you have the nerve stimulator?
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Old 01-14-2014, 11:14 AM #24
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Not sure if I got this right...so I thought I would ask..did you or do you have the nerve stimulator?
I had two SCS's (spinal cord stimulators), one cervical and one thoracic, implanted June 2011. Had a revision in Nov 2011 on the thoracic SCS - percutaneous leads changed to a paddle lead and the battery relocated to the front/side. Had both of them removed last week.
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Old 01-14-2014, 02:53 PM #25
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AWW Nanc,
My heart truly goes out to you!!
I'm following your posts & am thinking of you!

My CRPS hand can't take much typing right now.
Can they inject something or do a nerve block(s)?
I'm wishing you relief!
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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Old 01-14-2014, 03:14 PM #26
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AWW Nanc,
My heart truly goes out to you!!
I'm following your posts & am thinking of you!

My CRPS hand can't take much typing right now.
Can they inject something or do a nerve block(s)?
I'm wishing you relief!
Thanks Di! Sorry your hand is bothering you so much. I have had so many nerve blocks, they do not work on me any longer and I started having bad reactions to the steriods and meds....there's a shocker

I did sleep fairly well (for me) last night. I was hurting so much yesterday that I broke down and took one demerol and I did ok with that...it helped me sleep
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Old 01-14-2014, 10:54 PM #27
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Hoping things go smoother for you very soon. ~Lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 01-17-2014, 10:03 AM #28
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The fun never ends It has been a week since my surgery. I do believe that I am allergic to adhesive...ugh! My husband had to change my bandages every day for the first week and that was torture! We tired a couple different types of bandages. My skin around each incision has been red and itchy. The past couple of days it has gotten so much worse. The itching has been keeping me awake at night and driving me CRAZY This morning it is even worse...I do not have bandages on, only the steri-strips. It is all red and inflamed under the strips (and ITCHY!) on all four incisions. I called and talked to the dr's assistant and she is gonna talk to the dr and call me back. Took some benedryl in the meantime

The surgical pain has eased a lot in three of the incisions, which is great! The front incision still bothers me a lot BUT, the pain I was having from the battery that was there is gone....I noticed a difference in that pain right away I think the nerve damage in my left shoulder/upper back is worse (caused from initial cervical scs implant).

Thanks for listening and for all the well wishes!
Nanc
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Old 01-18-2014, 05:21 PM #29
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Dear Nanc

My prayers are with you as you get through all these different types of pain. Wow, you are one brave gal and I hope you know what an inspiration you are.
I'm so glad to see that pain is easing slowly but surely.
Now for the itching!
...this too MUST pass!!

Rae

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Old 01-19-2014, 12:44 AM #30
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Quote:
Originally Posted by Nanc View Post
The fun never ends It has been a week since my surgery. I do believe that I am allergic to adhesive...ugh!
Hey Nanc, have you tried a tape that is like a paper tape for lack of known exactly what it's called. I hope you feel better soon hon!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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