Hi everyone. In the last 2 weeks I have gone from bad to worse. I have now got burning sensations on my arms, legs, face, top of one foot, and my upper back. Last night was more horrible than usual. Up until yesterday, my pains in my arms had been mainly in my upper arms with the occasional jolt down the length of my arms. Then yesterday my right hand felt like it was broken, that's how bad the pain was. The sides of my hand, right below my wrist, was very painful. For most of the day. Then in the middle of the night I kept waking to a steady, awful pain coming from near the elbows, and from the thumbpad on both hands, all 4 spots with searing pain at the same time. This went on most of the night. Between that, my right leg and foot and hip pain, and my normal upper arm pains in both arms, it didn't make for a good night.

I guess I am wondering how I am going to last another 3 months until my neuro appt. Like I said before, I don't even know if I have rsd. Whatever it is, I have had it for years, with things just getting worse. I know that there are many many people much worse off than me. And I am thankful that I have some meds to help me. I guess I just want to know what is going with me.

Thanks for listening to my woes once again. . .

Hey rory...

I'm sorry things are crappy as hell for you right now, there are times things just get so bad you don't know if you can stand another day We get how that feels. I can only hope that tomorrow is better for you, and that you get some sleep tonight.

Hang in there and don't ever give up. I went through a couple of weeks where it literally felt like I'd broken my left wrist, it was so bad. I could barely lift my arm for the screaming pain. I started wearing that elastic tubing stuff for some support, and just battled through, and in time it faded off...mostly. Recently, I had a similar thing with my right hand, it was suddenly awful, and I was so freaked out, but again, in a couple of weeks things were easier and it's ok mostly now. Sometimes all you can do is battle on through it, tick the days off, and never give up that fight. Just try to keep gently moving - CRPS loves you to be still so it can dig its claws in deeper...

I'm not in your shoes, and I don't pretend to know how you feel, but I understand your fear of that unknown future, and the fear of the pain staying the same. It is a frightening thing to possibly have ahead, not helped when you still don't know for sure what's causing it. Keep up with your meds you have, and try to use whatever distractions you can to keep your mind occupied. I hope tomorrow is a better day and the start of a better time for you.

Bram.

Thanks Bram for your as always encouraging words. Its good to be able to talk to others who know what I'm feeling.I do have a wonderful family, but its hard for them to understand, I'm sure.

As I'm writing this, the burning has now gone into my fingers and is in my face, right under my eye. Everyday seems to bring something new!! My left leg is the only part that is pain free, so that's something to be thankful for at least.

Take care, and thank you !

Hi Rory, I'm sorry you're in so much pain. I wanted to tell you that when I feel real bad, I try to stay calm and lie down with a heating pad on my painful areas. I make a cup of tea and have chocolate nearby. I also watch a comedy on tv and take my pain meds. I take extra pain meds (which my dr okay'd) when I have really bad rsd pain flares. I then try to remind myself that the flare won't last forever, and try to distract myself until it passes. I call this my rsd flare list/kit. I got this great idea from Brambledog. It has helped me alot. I hope your flares pass soon and that your neurologist can help you to feel better. Take care.