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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Whoo hoo! I'm getting the medtronic pain pump with Prialt in it. Yes, I've read all the black box warnings and whatnot. If it's horrible, I'll get it taken out, but the trial went really well and I felt great that day. My feet felt pretty much normal and my pain went down to a 2!
I'll go in Wed really early, they put the catheter in my back when I'm still awake the doc said, then they knock me out and put the device in me. I'll stay overnight in the hospital. The doc said I'll be sore for a few days but that I should be able to go back to work the following Monday. I got a big bottle of Vit C to start loading up on that. Should've been doing it already, but I've read it's a super good idea to do now. Any other advice? |
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#2 | ||
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I take 1000 mg daily. I wish you the best. I have only read it is good to take before any surgery but not sure how much. Just wanted to wish you the best will try to find the dosage for you
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"Thanks for this!" says: | RSD ME (01-17-2014) |
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#3 | |||
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Less than 24 hours! I think I started getting nervous last night. I just keep telling myself it'll all be okay.
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#4 | ||
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Whooop!!!!
![]() I'm really happy for you, will have my fingers crossed that it works as well as the trial has.....pain down to a 2 has to be worth a good shot ![]() Bram.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#5 | ||
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That's fantastic Chaos! A score down to 2, well I cant even imagine how wonderful that felt! Best of luck.
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"Thanks for this!" says: | RSD ME (01-17-2014) |
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#6 | |||
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Good luck chaos!! I am glad the trial went well for you. My PM dr recommended the pump for me, and I would've went for it if we could figure out a drug to use. My family dr said no way for me because I am allergic to everything
![]() Glad you are able to use the meds they put in there...I am happy for you and hope your relief begins real soon!! Nanc ![]() |
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"Thanks for this!" says: | RSD ME (01-17-2014) |
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#7 | ||
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Wishing all the best for you, and a successful surgery. Keep us posted
__________________
1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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"Thanks for this!" says: | RSD ME (01-17-2014) |
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#8 | |||
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Senior Member
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Good luck tomorrow! Keep us posted on how you are doing.
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"Thanks for this!" says: | RSD ME (01-17-2014) |
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#9 | ||
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Senior Member
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Hi Chaos,
I hope the implantation surgery goes as expected and that you get great results from this !
__________________
. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
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"Thanks for this!" says: | RSD ME (01-17-2014) |
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#10 | ||
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Thinking of you today. I hope this helps you. Wishing you the best
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"Thanks for this!" says: | RSD ME (01-17-2014) |
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