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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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01-18-2014, 07:58 PM | #1 | ||
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Welcome! I have a few questions (since you made the mistake of asking :-)
How are the stroke and the CRPS related? What happened to the toe? I'm so happy for you that you achieved a remission!!
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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01-19-2014, 08:30 AM | #2 | ||
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Hi and welcome back!
Wow that's amazing that you've had remission for six years. I understand your fear of further surgery though, I'd be freaked out as well... What kind of doctors have you got behind you, and do they 'get' you situation? Is there any chance of them meeting up and discussing a plan for your surgery? I've read research that believes that if the pain in the affected area is really controlled before surgery, and then after surgery (using a continuous epidural if necessary) then the risk of further CRPS pain and spread is greatly reduced. Something to do with the pain signals being turned off in the brain, in that area where the CRPS is actively overdoing your body's response to injury. That means that your pain centres kind of snooze through it, rather than being on high alert and ready to overreact. If you know what I mean lol. You can also take Vitamin C 500mg daily before and after surgery to help reduce the risk of spread, pretty low-key, but it has been proven to help, and doesn't do any harm. Take care of yourself, and I hope you have a good day today. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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01-19-2014, 11:13 AM | #3 | ||
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Yes Vitamin C. I've been taking it since I found out my newest little goobernwas breech and I had to have a C Section. I take 6000mg a day. Take it for 2 wks before surgery, and 45 days after. Also have them do a very dense block when they do the surgery. It's supposed to help keep spreading and reactivation at bay. I wish you all the luck and will pray for you.
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"Thanks for this!" says: | moosey2me (02-26-2014) |
01-20-2014, 02:16 AM | #4 | ||
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Interesting, RSD from stroke.... Did anyone ever mention Central Pain Syndrome to you? It is also rare, but I believe stroke is the most common cause. However, I don't think CPS causes the hair and nail changes that RSD does. If you have CPS and not RSD, that might make a difference as far as spreading and your toe. You might do a little reading about it, see if it fits better than RSD.
http://www.ninds.nih.gov/disorders/c...ntral_pain.htm CPS can also be caused by RSD, which is what my neuro thinks may have happened with me, and why I know a little about it. Me? I think the RSD just moved into my spine, as it has spread over time. Sorry you are having to deal with this! |
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"Thanks for this!" says: | moosey2me (02-26-2014) |
01-20-2014, 03:59 PM | #5 | |||
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daylilyfan, I'll look into that. Thank you. Since I was in remission I was not keeping up with the research. I felt I needed to keep the whole subject in a little box in the back of my brain.
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01-21-2014, 09:38 AM | #6 | ||
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Hi Sage and welcome back. I'm sorry you're having such tough time and hope and pray that you will feel better soon whatever you decide to do with your toe.
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RSD ME . |
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02-26-2014, 02:07 AM | #7 | ||
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I see many people suggesting you take Vit C before and after surgery. Everyone becareful taking Vit C. I am not able to take Vit C pills due to the fact they case me to get kidney stones
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01-20-2014, 04:33 PM | #8 | ||
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Quote:
__________________
1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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01-20-2014, 04:45 PM | #9 | |||
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Quote:
So, I'll co-sign the painful numbness part. Along with all those other things we deal with.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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"Thanks for this!" says: | Lottie (01-20-2014) |
01-20-2014, 05:38 PM | #10 | |||
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Junior Member
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Quote:
The lightning bolts of pain that enter my toes can cause my leg to fly up in the air. Peripheral Neuropathy. That happens much less now but is still often the result of removing a shoe and my foot is screaming, even without the lightning bolts. Can you describe a bit more about painful numbness? I'm wondering if my foot qualifies... |
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