Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-21-2014, 01:32 PM #1
CRPSsongbird CRPSsongbird is offline
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Default HEy everyone

Seemingly good news. The new meds (after being on the for a few months now) are really helping! I am now off the diazepam and the doc is weaning down the oxycodone!!! than k goodness, I hated how foggy it made me and the havoc it played with my bowels...tmi sorry. I am now on a 5mg 3x's a day of methadone. Scary sounding I know, but the new doc really seems to know what he was talking about! He switched to that because he said it made no sense to put someone in constant pain on a short acting pain med, the methadone lasts for something like 12-24 hours in your system after its built up. And boy howdy can I tell the difference I have had WAY less flares ups and worse pain days. I think keeping the lions share of the pain under control all the tie is making the difference. Also a night a day change was the nonnarcotic Doxepin. We FINALLY found one I didn't have some sort of reaction to!! So a few steps in the right direction at last!!! I hope you all get to this same point!
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Old 01-21-2014, 01:53 PM #2
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Hi Songbird,
I'm so glad you have meds that are helping you now. I hope your new meds keep helping you and that you feel better every day. I will pray that they do. Take care.
Sincerely, Renee.
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Last edited by RSD ME; 01-21-2014 at 02:34 PM. Reason: Sorry, I got side tracked.
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Old 01-21-2014, 02:06 PM #3
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Hey Songbird! Happy to hear you are doing better. Glad your new dr seems to know what he is doing...rare these days! Also glad that you found some meds to work for you. I tried methadone had a bad reaction to it.

Good to see you....
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Old 01-21-2014, 02:18 PM #4
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Hey back songbird!!

So happy for your relief! I know you really had a bad time of it for quite awhile.
Thanks for sharing your good news!
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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Old 01-21-2014, 03:23 PM #5
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Welcome back Songbird!!!

How lovely to see you back again - and with good news! Whoop!

Getting some of that pain under control sounds like it's worked wonders for you, you sound so upbeat and hopeful

May this be the first of many good months for you. Keep it up

Bram.
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Patella femoral arthritis both knees.

Keep smiling!
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Old 01-21-2014, 09:10 PM #6
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I'm so glad to hear you are doing better and that the doctors FINALLY got you on a med combo that is working for you.
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