I've had some chills on my left side around my ribs round to my back. Freaks me out because I've had some muscle spasms in my ribs/chest that feel very scary, and I'm afraid the chills will set it off. I hate getting dressed on a cold morning!!!

Really glad to hear your wound is behaving a bit better than it was. Take care of yourself.

Bram.

Hi Nanc. I hope you're feeling a little better today. I don't have CRPS II, but know that with CRPS I that surgery with rsd takes a long time to heal. (at least in my experience.)
And Hi Tessa, I wanted to thank you for bringing up drs wanting to treat spread aggressively. I thought that's what they wanted to do with spread too, and was surprised when the NP at my pm drs office said to wait until spring to talk about treating my rsd spread. I need to talk to my pm dr next month and ask him to treat is asap. If they don't want to I think I will be seeing a new pm dr asap. I sort of feel like they have given up on me since I've had rsd for over two years and don't qualify for a SCS anymore. I don't think that I'm going to make them much money anymore so they just don't seem to care as much. (maybe I'm wrong, but my gut is saying otherwise.) I'm also going to try to wean off the percs that they are giving me. They say I don't take a high enough dose to have it affect my organs, but I feel sick to my stomach when I take them anymore. They do help with the pain, but at what cost? It's just not worth the risk to me. I hope that new drug gets approved for RSD (Neurondrate (sp?) so that maybe we can all take it and get rid of RSD once and for all.
And Nanc, I'm sorry again for getting sidetracked. I wanted to tell you too that when I was healing from my surgical wounds, I felt like a ping pong ball with my drs. None of them could explain the prolonged pain I felt and would pass me on to the next dr until I finally had my pm dr and endo dr say that I probably had rsd spread. Also, that was around the time I got fibromyalgia too. My neurologist confirmed that. I hope that doesn't happen to you, but just be careful to tell all your drs every pain you feel and have them document it, so that you are sure they don't just push you off to the next dr to try to explain your pain. Take care my friends. My thoughts and prayers are with you all, in hopes that you all have a pain free as possible day today. With love, Renee.

Sorry to side track this thread, but I have that exact sensation on my original location. Of course I'm not glad for either of us, but when I try to explain this people look at me as if I've become just overly dramatic. It feels as if there's a new incision with tabasco sauce poured in. Thanks for the insight about spreading.

Nanc, are you keeping notes on your symptoms? Please remember your
Vit. C and maybe a heating pad on the site?

Hey Di! I am keeping notes for a change (trying to get better with that). I cannot take Vit C because of my interstitial cystitis (it irritates my bladder ). Dr told me not to use heat on the incision sites because of the allergic reaction, heat will make the reaction worse. But maybe I can use heat after they heal up. My sister-in-law gave me a really cool heat pack for Christmas

Oh Nanc, I'm sorry I should have remembered that. Please forgive the "duh"
moment? And of course you're still very early from surgery for any heat.

Side tracking a bit more.. sorry Nanc.

Az-Di, I totally understand that "look" I don't think most people can even fathom the types of pain we have.. even most doctors. One doctor whom I love actually understands it quite well and one day when I was expressing how much worse my deep bone pain was getting from the top of my femur to my foot - he said that "I could probably feel the blood moving through my bone marrow" that is how sensitive our nerves are. That made sense and shocked me to hear how much he understood what we/I are going through. He is also the doctor that recommended the Mexiletine which is helping some.

The look I have trouble the most with is when trying to explain to someone how the cold temperatures affect my pain.. they give you that look like "my joints hurt to when it is cold" .. the actual air hurts me like someone is holding two live wires in my legs like lightning bolts... then the "look" just like you said.. I don't understand why shingles get's so much attention on TV commercials and in magazines etc., I've had shingles and yes it hurts like heck (no offense to anyone) but seriously why can't they do a commercial for CRPS oh yeah because they can't fathom this type of pain! grrr.

Okay... I'm done thanks for the side-track Nanc. Thinking good thoughts for you tonight!

It's all about advertising dollars and selling their drugs. If they really do come out with a drug specifically for CRPS perhaps this is where I pitch a commercial for them.


Oh Nanc, I am so sorry that you are dealing with so much. I saw the pics and omg OOOOUUUUCCCHHHH! I wish I had something to offer you. A silly cyber hug is all I have I sure hope you find something that helps and that you feel better quick!

Thanks Vrae, I will take the cyber hug

I hope you are doing better