Hi Guys!! Hope you are having a lower pain night. I am finally starting to feel a little better. Still having issues, but the incisions have finally stopped oozing. Now for the allergic reactions to clear up...ugh!

So I mentioned in an earlier post that I was fearing that my RSD is spreading to the incision site in my right front/side (where the thoracic battery was located). Been getting some awful sharp, shooting, burning pains in that area the past two days. I have also been getting chills, but on the right - front/side (near ribs), arm, hip. It is really weird feeling. And no, I am not running a fever when this is happening.

Was wondering if anyone else has experienced that?

Thanks!
Nanc

Yes both my arms do. Its a very odd feeling when there the only thing that's really cold and have chills! It usually happens when im flaring.

Thanks tos. And yes, it really is an odd feeling....

Remember this was major surgery. The burning sharp pain can be from nerves healing and trying to reconnect to each other. It might not be from spread. I'm having the same thing with my c section incision scar. It's been a month and I am still getting it.

Hi Nanc, I'm so sorry you are having all this pain on top of everything else you have been through. When I had my two surgeries on my stomach for my endometriosis, I had stabbing, cramping and burning pain to the site of the surgery that had the most problems. Then there were times that that site was stone cold, just like other parts of my body that I may have rsd. (That site was on my lower left side of my stomach). My endo dr told me that he thought the after three months of still having this pain that it might be something else like rsd spread and to see my pm dr. My pm dr said it's possible that it was rsd spread, but he said it could also be the two endo surgeries I had done in 2012. He said it may take up to a year to heal from them completely and for the pain to go away. Well, it's been over a year now and the pain is still there. My endo dr said it shouldn't be from my endo surgeries because my ultrasound showed after a year that I was endo free. (thank goodness for that at least). My pm dr said it is now possible that it is rsd spread, but my drs are never 100 percent sure because they say they don't know enough about rsd to confirm it. I feel that it is rsd spread because the pain is similar to my other rsd pains. The meds I take for my rsd help calm the pain in my stomach as well, or I wouldn't be able to stand it. I also use a heating pad to ease the pain. I don't mean to scare you. You may not have rsd spread and may just need more time to heal. It takes a long time to heal from major surgery, so give yourself that time by resting and not overdoing it. You may feel better in a few months. I will pray that you do. Take care my friend. Sincerely, Renee.

Thanks Allanira and Renee. Hopefully it is just the healing process. I just haven't experienced this pain or chills in the other three incision areas or when I had the SCS's implanted and revised. Guess I need to be a little more patient

Hey Nanc,

I am sorry you are having such a rough time of it! Near the area of nerve damage that caused my CRPS II if I touch that area it will send an ice cold rush down that nerve path even though it feels as if the skin has been removed and someone is pouring alcohol or salt on it BURNING constantly. I really hope that is just your sensory nerves healing normally. One thing you might want to do right away is start desensitizing that area by touching and stroking it with a flat palm, soft cloth etc., this will help the nerves respond to good stimulation and can help reduce numbness that often occurs after surgery along the incision site. I remember my doctor telling me that spread should be treated as a new diagnosis and treated aggressively as soon as symptoms start. That is what I am doing with my arms and they haven't worsened as quickly as my opposite leg.

Sure hope you turn a positive corner soon!!

Thanks Tessa! There is no way I can start desensitizing that area right now. I touch it when I wash it and put bacitracin on it and that is it! That is enough to bring me to tears. You should see these incision sites...kinda nasty looking and a little raw. Ick! I had some nerve damage in my upper back/shoulder area when I had the SCS's implanted. It is a lot worse now

Glad your arms are responding and have not worsened!

Oh I am so sorry! I should have been more clear. I didn't mean on the incision itself that would not be good due to germs but, around it say out 2-3" from the actual incision and then go in larger circles away from the site if you can or when you can. I'm so sorry your pain is worse.. though it is hard, try and stay optimistic that this is healing pain.

Sending good vibes your way...

I am with you now, I understand. Brain is not functioning so well, lack of sleep Benadryl usually knocks me out, but it is not doing it now. Itching so much...ugh!

Yeah, I am hoping it is healing pain and maybe it is worse because of the allergic reaction!