Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-24-2014, 08:03 PM #1
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eevo61 eevo61 is offline
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eevo61 eevo61 is offline
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Join Date: Aug 2013
Location: California
Posts: 389
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Default back pain,crps know what you mean

know exactly what u mean
Quote:
Originally Posted by Nanc
Hey finz! Thanks for your reply. Surgey went pretty well (obviously since I am on here right now ).

Regarding the SCS's...I had two (cervical and thoracic) implanted June 2011 and a revision on the thoracic one Nov 2011. They helped me greatly, so much so that I was able to work another year and a half. I was losing the use of my hands. The SCS's helped me with desensitization big time! If I could go back in time, I would do the same thing and get them.

The issues leading up to the removal is that the thoracic paddle lead migrated up and that battery was twisted and hurting. (that battery was moved to my front right side with the revision in Nov 2011) Also, every time I had either one of them on, I would get pain and spasms in my lower back. Reducing the stimulation wasn't effective for me.

Hope this makes sense, just took some more pain meds

Nanc

hello everybody,i had back pain and hip pain after the scs implanted on jan 2013 well since may i was complaining about flare ups and pain in my surgical site areas and my md keep telling me nothing was wrong plus the fact that my case in wc took until jan 2014 to get authorization from the insurance to reposition the scs battery to my abdomen,let me tell you the relief i get from the scs to my affected foot work at lest 60% but the back pain,hip pain and flare ups were consuming my energy day by day until the past jan 21 2014 when finally it was switched to my abdomen it feels different since the first moment I'm just waiting to heal completely and take the staples out and try again but the pain is for now control in all ways ,did work for me at least for know so I'm willing to try again otherwise i wont have any further surgery to fuse my bones on my right affected foot, i hope this time work as is supposed to and have the chance to be able to work my company had not allowed me to return with any kind of modifications is a year already lucky for me I'm union member and thats gives me 3 more months to be off and hope to get better at least in 1 so i can continue with my normal life,I'm i pharmacy technician,this is my life what i love to do and who i am with the scs problem and crps flare ups i kind of loose my identity and is getting me so hard because i don't see a day without trying to be normal,hope to all of you whatever decision you take just try one more time maybe this time will work,we all have faith and desire a future the most normal possible is hard when is not like that and we face all kind of challenges to at least go on with a single day,wao, i swear never in my life i imagine such a horrible feeling but the feeling of been not useful on any area of a daily life,i just keep my hopes high and always which we all get better soon,we might never find the answers to every question but been in touch with each other make us understand that we are not alone and we are here to support each other because in that big,huge world outer no many people know how much we struggle in life,is so sad but this is not who we are,we are not capable to do all the things normal people do but for sure we are what others are not, we are fighters, and no one will take that feeling away from any of us because we are the ones who are teaching other like us to stand still and strong, there is always a rainbow after the storm hope this new year we all can see it at least once,we deserved, hope you all doing better this year I'm also including myself because i also need a shiny day to feel everything except pain,pain won't take us down ever because we always will fight back, blessings to all and as always i wish the best.
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